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Patient Survey

The overall purpose of the patient experience survey is to gain an understanding of patients' perspectives on the NCCCP pilot study and to assess how well patients' health care and informational needs are being met. Through the survey, RTI assessed patients' overall satisfaction with care, their view of multidisciplinary care team coordination, knowledge of NCCCP services, emotional and financial support received from the program, and experiences with access to appointments and waiting time.

To conduct the survey, RTI created an instrument that includes existing, tested items for each construct incorporated into the evaluation plan. RTI also developed new questions as needed. The survey was pre-tested using cognitive appraisal methodology and subsequently revised before fielding. Once the survey was developed and tested, RTI collected the data from lists of patients provided by the NCCCP sites using a mail survey with telephone follow-up format. The survey was conducted in both English and Spanish during Year 2 and Year 4 of the evaluation.

These data, in addition to secondary data analysis from the baseline assessment survey (BAS) and other tools, were analyzed and reported in an annual evaluation report provided to NCI at the end of each year. Protocols for the site visits were adapted at the beginning of each year to incorporate knowledge gained during the previous visits and to address additional evaluation questions specified in the three-year evaluation plan. As data were collected for the site visit, coding and analysis were completed in order to provide cross-site, longitudinal findings for the NCCCP and inform future program development.

Last Modified: 18 Oct 2013