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Number of publications: 200

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Authors: Walling AM, Weeks JC, Kahn KL, Tisnado D, Keating NL, Dy SM, Arora NK, Mack JW, Pantoja PM, Malin JL
Title: Symptom Prevalence in Lung and Colorectal Cancer Patients.
Type: Journal Article
Date: 2014 Jun 25
Journal: J Pain Symptom Manage
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Colorectal;   Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Keywords: none
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Authors: Guy GP Jr, Yabroff KR, Ekwueme DU, Smith AW, Dowling EC, Rechis R, Nutt S, Richardson LC
Title: Estimating the health and economic burden of cancer among those diagnosed as adolescents and young adults.
Type: Journal Article
Date: 2014 Jun 01
Journal: Health Aff (Millwood) 33(6):1024-31
Topic(s): Economics of Cancer;   Health Care Systems;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Economics Research on Cancer Interagency Consortium (HEROiC);   Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: none
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Authors: Keegan TH, Tao L, DeRouen MC, Wu XC, Prasad P, Lynch CF, Shnorhavorian M, Zebrack BJ, Chu R, Harlan LC, Smith AW, Parsons HM, AYA HOPE Study Collaborative Group
Title: Medical care in adolescents and young adult cancer survivors: what are the biggest access-related barriers?
Type: Journal Article
Date: 2014 Jun
Journal: J Cancer Surviv 8(2):282-92
Topic(s): Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Hays RD, Reeve BB, Smith AW, Clauser SB
Title: Associations of cancer and other chronic medical conditions with SF-6D preference-based scores in Medicare beneficiaries.
Type: Journal Article
Date: 2014 Mar
Journal: Qual Life Res 23(2):385-91
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Breast;   Colorectal;   Corpus Uteri;   Lung;   Lymphoma;   Prostate;   Renal;   Skin;   Urinary Bladder
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: none
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Authors: Klabunde CN, Clauser SB, Liu B, Pronk NP, Ballard-Barbash R, Huang TT, Smith AW
Title: Organization of primary care practice for providing energy balance care.
Type: Journal Article
Date: 2014 Jan-Feb
Journal: Am J Health Promot 28(3):e67-80
Topic(s): Diet;   Health Care Systems;   Physical Activity;   Preventive & Screening Services;   Prevention;   Weight Status
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: none
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Authors: Forsythe LP, Kent EE, Rowland JH
Title: Survivorship
Type: Book Chapter
Date: 2014
Book Editors: Niederhuber J, Armitage J, Doroshow J, Kastan M, Tepper J
Book Title: Abeloff's Clinical Oncology
ISBN: 9781455728657External Web Site Policy
Topic(s): Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Zebrack B, Kent EE, Keegan TH, Kato I, Smith AW, AYA HOPE Study Collaborative Group
Title: "Cancer sucks," and other ponderings by adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2014
Journal: J Psychosoc Oncol 32(1):1-15
Topic(s): Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   Attitude to Health;   Cohort Studies;   Data Collection;   Female;   Humans;   Male;   Neoplasms;   Patient Satisfaction;   psychology;   Qualitative Research;   statistics & numerical data;   Survivors;   therapy;   Young Adult
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Authors: Arora NK, Jensen RE, Sulayman N, Hamilton AS, Potosky AL
Title: Patient-physician communication about health-related quality-of-life problems: are non-Hodgkin lymphoma survivors willing to talk?
Type: Journal Article
Date: 2013 Nov 01
Journal: J Clin Oncol 31(31):3964-70
Topic(s): Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;   Aged;   Cross-Sectional Studies;   Female;   Humans;   Lymphoma, Non-Hodgkin;   Male;   Middle Aged;   Physician-Patient Relations;   psychology;   Quality of Life;   Survivors
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Authors: Stover AM, Reeve BB, Piper BF, Alfano CM, Smith AW, Mitchell SA, Bernstein L, Baumgartner KB, McTiernan A, Ballard-Barbash R
Title: Deriving clinically meaningful cut-scores for fatigue in a cohort of breast cancer survivors: a Health, Eating, Activity, and Lifestyle (HEAL) Study.
Type: Journal Article
Date: 2013 Nov
Journal: Qual Life Res 22(9):2279-92
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Research Methodology;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Aged;   Breast Neoplasms;   classification;   Cohort Studies;   diagnosis;   Fatigue;   Female;   Health Status;   Humans;   Middle Aged;   physiopathology;   Quality of Life;   Reference Values;   Survivors
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Authors: Wood WA, Chai X, Weisdorf D, Martin PJ, Cutler C, Inamoto Y, Wolff D, Pavletic SZ, Pidala J, Palmer JM, Arora M, Arai S, Jagasia M, Storer B, Lee SJ, Mitchell S
Title: Comorbidity burden in patients with chronic GVHD.
Type: Journal Article
Date: 2013 Nov
Journal: Bone Marrow Transplant 48(11):1429-36
Topic(s): Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Forsythe LP, Parry C, Alfano CM, Kent EE, Leach CR, Haggstrom DA, Ganz PA, Aziz N, Rowland JH
Title: Use of survivorship care plans in the United States: associations with survivorship care.
Type: Journal Article
Date: 2013 Oct 16
Journal: J Natl Cancer Inst 105(20):1579-87
Topic(s): Health Care Systems;   Health-related Quality of Life;   Quality of Care;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): Breast;   Colorectal
Data Source/Project/Initiative(s): Survey of Physician Attitudes Regarding the Care of Cancer Survivors (SPARCCS)
Keywords: Adult;   Aged;   Continuity of Patient Care;   Cross-Sectional Studies;   epidemiology;   Female;   Health Care Surveys;   Humans;   Interprofessional Relations;   Logistic Models;   Male;   manpower;   Medical Oncology;   Middle Aged;   Multivariate Analysis;   National Cancer Institute (U.S.);   Neoplasms;   Patient Care Planning;   Physician's Practice Patterns;   Physicians, Primary Care;   Quality of Health Care;   Questionnaires;   standards;   statistics & numerical data;   Survivors;   therapy;   trends;   United States
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Authors: Kent EE, Forsythe LP, Yabroff KR, Weaver KE, de Moor JS, Rodriguez JL, Rowland JH
Title: Are survivors who report cancer-related financial problems more likely to forgo or delay medical care?
Type: Journal Article
Date: 2013 Oct 15
Journal: Cancer 119(20):3710-7
Topic(s): Economics of Cancer;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;   Aged;   Delivery of Health Care;   economics;   Female;   Follow-Up Studies;   Health Expenditures;   Health Services Accessibility;   Humans;   Male;   Middle Aged;   Neoplasms;   Patient Preference;   Prognosis;   psychology;   statistics & numerical data;   Survivors;   therapy;   Withholding Treatment
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Authors: Wood WA, Deal AM, Reeve BB, Abernethy AP, Basch E, Mitchell SA, Shatten C, Hie Kim Y, Whitley J, Serody JS, Shea T, Battaglini C
Title: Cardiopulmonary fitness in patients undergoing hematopoietic SCT: a pilot study.
Type: Journal Article
Date: 2013 Oct
Journal: Bone Marrow Transplant 48(10):1342-9
Topic(s): Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS);   Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Adult;   adverse effects;   Aged;   Cardiovascular Physiological Phenomena;   Exercise Test;   Female;   Hematopoietic Stem Cell Transplantation;   Humans;   Male;   methods;   Middle Aged;   Oxygen Consumption;   physiology;   Pilot Projects;   Quality of Life;   Transplantation Conditioning;   Transplantation, Homologous
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Authors: Dowling EC, Chawla N, Forsythe LP, de Moor J, McNeel T, Rozjabek HM, Ekwueme DU, Yabroff KR
Title: Lost productivity and burden of illness in cancer survivors with and without other chronic conditions.
Type: Journal Article
Date: 2013 Sep 15
Journal: Cancer 119(18):3393-401
Topic(s): Economics of Cancer;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Economics Research on Cancer Interagency Consortium (HEROiC);   Medical Expenditure Panel Survey (MEPS) - Experiences with Cancer Survivorship Supplement
Keywords: Adolescent;   Adult;   Aged;   Aged, 80 and over;   Chronic Disease;   Cost of Illness;   economics;   epidemiology;   Female;   Humans;   Male;   Middle Aged;   mortality;   Neoplasms;   Quality of Life;   Survivors;   therapy;   United States;   Young Adult
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Authors: Mazor KM, Gaglio B, Nekhlyudov L, Alexander GL, Stark A, Hornbrook MC, Walsh K, Boggs J, Lemay CA, Firneno C, Biggins C, Blosky MA, Arora NK
Title: Assessing patient-centered communication in cancer care: stakeholder perspectives.
Type: Journal Article
Date: 2013 Sep
Journal: J Oncol Pract 9(5):e186-93
Topic(s): Decision-making;   Health Care Systems;   Information Seeking;   Outcomes Research Measures & Methods;   Quality of Care;   Research Methodology
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: none
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Authors: Barile JP, Reeve BB, Smith AW, Zack MM, Mitchell SA, Kobau R, Cella DF, Luncheon C, Thompson WW
Title: Monitoring population health for Healthy People 2020: evaluation of the NIH PROMIS® Global Health, CDC Healthy Days, and satisfaction with life instruments.
Type: Journal Article
Date: 2013 Aug
Journal: Qual Life Res 22(6):1201-11
Topic(s): Cognitive Methods in Survey Research;   Health-related Quality of Life;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Surveillance;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;   Centers for Disease Control and Prevention (U.S.);   Factor Analysis, Statistical;   Female;   Health Status;   Healthy People Programs;   Humans;   Male;   Mental Health;   methods;   Middle Aged;   National Institutes of Health (U.S.);   Patient Outcome Assessment;   Personal Satisfaction;   Program Evaluation;   Quality of Life;   United States;   Young Adult
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Authors: Kent EE, Sender LS, Morris RA, Grigsby TJ, Montoya MJ, Ziogas A, Anton-Culver H
Title: Multilevel socioeconomic effects on quality of life in adolescent and young adult survivors of leukemia and lymphoma.
Type: Journal Article
Date: 2013 Aug
Journal: Qual Life Res 22(6):1339-51
Topic(s): Health Disparities;   Health-related Quality of Life;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship
Tumor Site(s): Leukemia;   Lymphoma
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   Female;   Health Status Disparities;   Health Status Indicators;   Health Surveys;   Humans;   Leukemia;   Logistic Models;   Lymphoma;   Male;   Multivariate Analysis;   psychology;   Quality of Life;   Residence Characteristics;   Social Class;   Socioeconomic Factors;   Survival Analysis;   Survivors;   Young Adult
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Authors: Parry C, Kent EE, Forsythe LP, Alfano CM, Rowland JH
Title: Can't see the forest for the care plan: a call to revisit the context of care planning.
Type: Journal Article
Date: 2013 Jul 20
Journal: J Clin Oncol 31(21):2651-3
Topic(s): Health Care Systems;   Health-related Quality of Life;   Outcomes Research Measures & Methods;   Quality of Care;   Research Methodology;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Advance Care Planning;   Continuity of Patient Care;   Delivery of Health Care;   Health Services Research;   Humans;   Neoplasms;   Patient Care Planning;   Survivors;   therapy
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Authors: Smith AW, Bellizzi KM, Keegan TH, Zebrack B, Chen VW, Neale AV, Hamilton AS, Shnorhavorian M, Lynch CF
Title: Health-related quality of life of adolescent and young adult patients with cancer in the United States: the Adolescent and Young Adult Health Outcomes and Patient Experience study.
Type: Journal Article
Date: 2013 Jun 10
Journal: J Clin Oncol 31(17):2136-45
Topic(s): Health Disparities;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   Female;   Humans;   Male;   Neoplasms;   physiopathology;   psychology;   Quality of Life;   Treatment Outcome;   United States;   Young Adult
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Authors: Forsythe LP, Kent EE, Weaver KE, Buchanan N, Hawkins NA, Rodriguez JL, Ryerson AB, Rowland JH
Title: Receipt of psychosocial care among cancer survivors in the United States.
Type: Journal Article
Date: 2013 Jun 01
Journal: J Clin Oncol 31(16):1961-9
Topic(s): Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;   African Americans;   Aged;   Counseling;   etiology;   European Continental Ancestry Group;   Female;   Health Services Needs and Demand;   Hispanic Americans;   Humans;   Logistic Models;   Male;   Middle Aged;   Multivariate Analysis;   Neoplasms;   Patient Satisfaction;   prevention & control;   psychology;   statistics & numerical data;   Stress, Psychological;   Survivors;   therapy;   United States
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Authors: Rowland JH, Kent EE, Forsythe LP, Loge JH, Hjorth L, Glaser A, Mattioli V, Fosså SD
Title: Cancer survivorship research in Europe and the United States: where have we been, where are we going, and what can we learn from each other?
Type: Journal Article
Date: 2013 Jun 01
Journal: Cancer 119 Suppl 11():2094-108
Topic(s): Health Care Systems;   Health-related Quality of Life;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Biomedical Research;   Delivery of Health Care;   epidemiology;   Europe;   European Union;   Humans;   mortality;   Neoplasms;   Survival Rate;   Survivors;   trends;   United States
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Authors: George SM, Smith AW, Alfano CM, Bowles HR, Irwin ML, McTiernan A, Bernstein L, Baumgartner KB, Ballard-Barbash R
Title: The association between television watching time and all-cause mortality after breast cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Cancer Surviv 7(2):247-52
Topic(s): Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Physical Activity;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Antineoplastic Agents, Hormonal;   Breast Neoplasms;   Cause of Death;   Comorbidity;   Exercise;   Female;   Humans;   Middle Aged;   Mortality;   Motor Activity;   Proportional Hazards Models;   Prospective Studies;   Questionnaires;   Risk Factors;   Sedentary Lifestyle;   SEER Program;   Socioeconomic Factors;   statistics & numerical data;   Survivors;   Tamoxifen;   Television;   therapeutic use;   therapy;   Time Factors
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Authors: Kent EE, Smith AW, Keegan TH, Lynch CF, Wu XC, Hamilton AS, Kato I, Schwartz SM, Harlan LC
Title: Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Adolesc Young Adult Oncol 2(2):44-52
Topic(s): Health Disparities;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Mason C, Alfano CM, Smith AW, Wang CY, Neuhouser ML, Duggan C, Bernstein L, Baumgartner KB, Baumgartner RN, Ballard-Barbash R, McTiernan A
Title: Long-term physical activity trends in breast cancer survivors.
Type: Journal Article
Date: 2013 Jun
Journal: Cancer Epidemiol Biomarkers Prev 22(6):1153-61
Topic(s): Health Behaviors & Survivorship;   Physical Activity;   Risk Factors;   Surveillance;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;   diagnosis;   Ethnic Groups;   Exercise;   Female;   Follow-Up Studies;   Health Behavior;   Humans;   Middle Aged;   Neoplasm Staging;   Prognosis;   Prospective Studies;   psychology;   Survival Rate;   Survivors;   therapy;   Time Factors
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Authors: Reilly CM, Bruner DW, Mitchell SA, Minasian LM, Basch E, Dueck AC, Cella D, Reeve BB
Title: A literature synthesis of symptom prevalence and severity in persons receiving active cancer treatment.
Type: Journal Article
Date: 2013 Jun
Journal: Support Care Cancer 21(6):1525-50
Topic(s): Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   adverse effects;   Aged;   Aged, 80 and over;   Antineoplastic Agents;   Clinical Trials as Topic;   complications;   epidemiology;   Female;   Health Status;   Humans;   Male;   Middle Aged;   Neoplasms;   Prevalence;   Radiation Injuries;   Severity of Illness Index;   therapy;   Young Adult
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Authors: Weaver KE, Foraker RE, Alfano CM, Rowland JH, Arora NK, Bellizzi KM, Hamilton AS, Oakley-Girvan I, Keel G, Aziz NM
Title: Cardiovascular risk factors among long-term survivors of breast, prostate, colorectal, and gynecologic cancers: a gap in survivorship care?
Type: Journal Article
Date: 2013 Jun
Journal: J Cancer Surviv 7(2):253-61
Topic(s): Health Care Systems;   Quality of Care;   Risk Factors;   Survivorship
Tumor Site(s): Breast;   Cervical;   Colorectal;   Corpus Uteri;   Prostate
Data Source/Project/Initiative(s): none
Keywords: Aftercare;   Breast Neoplasms;   California;   Cardiovascular Diseases;   Colorectal Neoplasms;   Comorbidity;   Cross-Sectional Studies;   Diabetes Mellitus;   Disease Susceptibility;   epidemiology;   Female;   Genital Neoplasms, Female;   Health Services Needs and Demand;   Humans;   Hypertension;   Male;   Neoplasms;   Obesity;   prevention & control;   Prostatic Neoplasms;   Risk Factors;   Sedentary Lifestyle;   Smoking;   statistics & numerical data;   Survivors
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Authors: Hamilton AS, Miller MF, Arora NK, Bellizzi KM, Rowland JH
Title: Predictors of use of complementary and alternative medicine by non-hodgkin lymphoma survivors and relationship to quality of life.
Type: Journal Article
Date: 2013 May
Journal: Integr Cancer Ther 12(3):225-35
Topic(s): Health-related Quality of Life;   Outcomes (All);   Survivorship;   Treatment
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Aged;   Complementary Therapies;   Cross-Sectional Studies;   Data Collection;   Female;   Humans;   Los Angeles;   Lymphoma, Non-Hodgkin;   Male;   Mental Health;   methods;   Middle Aged;   psychology;   Quality of Life;   Survivors
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Authors: de Moor JS, Mariotto AB, Parry C, Alfano CM, Padgett L, Kent EE, Forsythe L, Scoppa S, Hachey M, Rowland JH
Title: Cancer survivors in the United States: prevalence across the survivorship trajectory and implications for care.
Type: Journal Article
Date: 2013 Apr
Journal: Cancer Epidemiol Biomarkers Prev 22(4):561-70
Topic(s): Guidance & Policy Research;   Health Care Systems;   Health-related Quality of Life;   Surveillance;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;   Adult;   Aged;   Aged, 80 and over;   Child;   Child, Preschool;   epidemiology;   Female;   Humans;   Incidence;   Infant;   Infant, Newborn;   Male;   Middle Aged;   mortality;   Neoplasms;   Patient-Centered Care;   Prevalence;   Registries;   statistics & numerical data;   Survival Rate;   Survivors;   trends;   United States;   Young Adult
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Authors: Duggan C, Wang CY, Neuhouser ML, Xiao L, Smith AW, Reding KW, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R, McTiernan A
Title: Associations of insulin-like growth factor and insulin-like growth factor binding protein-3 with mortality in women with breast cancer.
Type: Journal Article
Date: 2013 Mar 01
Journal: Int J Cancer 132(5):1191-200
Topic(s): Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Genetics & Molecular Markers;   Outcomes (All);   Clinical Outcomes;   Risk Factors;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   Aged;   Aged, 80 and over;   blood;   Body Mass Index;   Breast Neoplasms;   California;   Cohort Studies;   epidemiology;   Female;   Humans;   Insulin-Like Growth Factor Binding Protein 3;   Insulin-Like Growth Factor I;   metabolism;   Middle Aged;   mortality;   New Mexico;   Proportional Hazards Models;   Prospective Studies;   Risk Factors;   SEER Program;   Washington
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Authors: Fouad MN, Lee JY, Catalano PJ, Vogt TM, Zafar SY, West DW, Simon C, Klabunde CN, Kahn KL, Weeks JC, Kiefe CI
Title: Enrollment of patients with lung and colorectal cancers onto clinical trials.
Type: Journal Article
Date: 2013 Mar
Journal: J Oncol Pract 9(2):e40-7
Topic(s): Decision-making;   Health Care Systems;   Health Disparities;   Research Methodology;   Treatment
Tumor Site(s): Colorectal;   Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Keywords: Adult;   Aged;   Aged, 80 and over;   Cancer Care Facilities;   Clinical Trials as Topic;   Colorectal Neoplasms;   Data Collection;   Demography;   drug therapy;   Female;   Humans;   Lung Neoplasms;   Male;   Medical Oncology;   Middle Aged;   Physician's Practice Patterns;   Sex Factors;   Specialization;   statistics & numerical data;   Young Adult
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Authors: Jensen RE, Arora NK, Bellizzi KM, Rowland JH, Hamilton AS, Aziz NM, Potosky AL
Title: Health-related quality of life among survivors of aggressive non-Hodgkin lymphoma.
Type: Journal Article
Date: 2013 Feb 01
Journal: Cancer 119(3):672-80
Topic(s): Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;   Aged;   Aged, 80 and over;   Cognition;   Female;   Health Status;   Humans;   Lymphoma, Non-Hodgkin;   Male;   Middle Aged;   mortality;   Neoplasm Invasiveness;   pathology;   physiology;   physiopathology;   psychology;   Quality of Life;   rehabilitation;   Self Efficacy;   statistics & numerical data;   Survivors
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Authors: Buchanan ND, King JB, Rodriguez JL, White A, Trivers KF, Forsythe LP, Kent EE, Rowland JH, Sabatino SA
Title: Changes among US Cancer Survivors: Comparing Demographic, Diagnostic, and Health Care Findings from the 1992 and 2010 National Health Interview Surveys.
Type: Journal Article
Date: 2013
Journal: ISRN Oncol 2013():238017
Topic(s): Economics of Cancer;   Health Care Systems;   Quality of Care;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: none
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Authors: Butler EN, Chawla N, Lund J, Harlan LC, Warren JL, Yabroff KR
Title: Patterns of colorectal cancer care in the United States and Canada: a systematic review.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):13-35
Topic(s): Guidance & Policy Research;   Health Care Systems;   Health Disparities;   Palliative & End-of-life Care;   Quality of Care;   Research Methodology;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Patterns of Care Studies/Quality of Care Studies;   SEER-Medicare Linked Database
Keywords: Canada;   Colorectal Neoplasms;   diagnosis;   epidemiology;   Humans;   Quality of Health Care;   Survival Analysis;   Terminal Care;   therapy;   United States
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Authors: Chawla N, Butler EN, Lund J, Warren JL, Harlan LC, Yabroff KR
Title: Patterns of colorectal cancer care in Europe, Australia, and New Zealand.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):36-61
Topic(s): Guidance & Policy Research;   Health Care Systems;   Health Disparities;   Palliative & End-of-life Care;   Quality of Care;   Research Methodology;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Patterns of Care Studies/Quality of Care Studies
Keywords: Adult;   Aged;   Australia;   Colorectal Neoplasms;   Delivery of Health Care;   diagnosis;   epidemiology;   Europe;   Female;   Humans;   Male;   Middle Aged;   New Zealand;   Quality of Health Care;   Registries;   Socioeconomic Factors;   Terminal Care;   therapy;   Young Adult
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Authors: George SM, McTiernan A, Villaseñor A, Alfano CM, Irwin ML, Neuhouser ML, Baumgartner RN, Baumgartner KB, Bernstein L, Smith AW, Ballard-Barbash R
Title: Disentangling the body weight-bone mineral density association among breast cancer survivors: an examination of the independent roles of lean mass and fat mass.
Type: Journal Article
Date: 2013
Journal: BMC Cancer 13():497
Topic(s): Health Behaviors & Survivorship;   Research Methodology;   Survivorship;   Weight Status
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adipose Tissue;   Adult;   Aged;   Aged, 80 and over;   Body Composition;   Body Weight;   Bone Density;   Breast Neoplasms;   epidemiology;   Female;   Humans;   Middle Aged;   New Mexico;   pathology;   Risk Factors;   SEER Program;   Survivors;   Washington
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Authors: Kent EE, Alfano CM, Smith AW, Bernstein L, McTiernan A, Baumgartner KB, Ballard-Barbash R
Title: The roles of support seeking and race/ethnicity in posttraumatic growth among breast cancer survivors.
Type: Journal Article
Date: 2013
Journal: J Psychosoc Oncol 31(4):393-412
Topic(s): Health Care Systems;   Health-related Quality of Life;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adaptation, Psychological;   Adult;   African Americans;   Breast Neoplasms;   ethnology;   European Continental Ancestry Group;   Female;   Hispanic Americans;   Humans;   Middle Aged;   Physician-Patient Relations;   psychology;   Self-Help Groups;   Social Support;   statistics & numerical data;   Survivors;   utilization
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Authors: Lipscomb J, Yabroff KR, Hornbrook MC, Gigli A, Francisci S, Krahn M, Gatta G, Trama A, Ritzwoller DP, Durand-Zaleski I, Salloum R, Chawla N, Angiolini C, Crocetti E, Giusti F, Guzzinati S, Mezzetti M, Miccinesi G, Mariotto A
Title: Comparing cancer care, outcomes, and costs across health systems: charting the course.
Type: Journal Article
Date: 2013
Journal: J Natl Cancer Inst Monogr 2013(46):124-30
Topic(s): Economics of Cancer;   Epidemiology Studies & Related Methods;   Health Care Systems;   Outcomes Research Measures & Methods;   Research Methodology;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Delivery of Health Care;   economics;   epidemiology;   Europe;   Health Care Costs;   Humans;   Medical Records Systems, Computerized;   mortality;   Neoplasms;   Survival Analysis;   therapy;   United States
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Authors: Smith AW, Cronin KA, Bowles H, Willis G, Jacobs DR Jr, Ballard-Barbash R, Troiano RP
Title: Reproducibility of physical activity recall over fifteen years: longitudinal evidence from the CARDIA study.
Type: Journal Article
Date: 2013
Journal: BMC Public Health 13():180
Topic(s): Methods for Assessing Risk Factors;   Monitoring Risk Factors;   Physical Activity;   Research Methodology;   Risk Factors
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   Coronary Artery Disease;   Demography;   Female;   Humans;   Longitudinal Studies;   Male;   Mental Recall;   Middle Aged;   Motor Activity;   physiology;   Reproducibility of Results;   Risk Factors;   statistics & numerical data;   Time Factors;   Young Adult
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Authors: Smith AW, Parsons HM, Kent EE, Bellizzi K, Zebrack BJ, Keel G, Lynch CF, Rubenstein MB, Keegan TH, AYA HOPE Study Collaborative Group
Title: Unmet Support Service Needs and Health-Related Quality of Life among Adolescents and Young Adults with Cancer: The AYA HOPE Study.
Type: Journal Article
Date: 2013
Journal: Front Oncol 3():75
Topic(s): Economics of Cancer;   Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Reeve BB, Stover AM, Jensen RE, Chen RC, Taylor KL, Clauser SB, Collins SP, Potosky AL
Title: Impact of diagnosis and treatment of clinically localized prostate cancer on health-related quality of life for older Americans: a population-based study.
Type: Journal Article
Date: 2012 Nov 15
Journal: Cancer 118(22):5679-87
Topic(s): Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Survivorship;   Treatment
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Activities of Daily Living;   Aged;   Aged, 80 and over;   Depressive Disorder, Major;   diagnosis;   Health Status;   Humans;   Male;   Prostatectomy;   Prostatic Neoplasms;   psychology;   Quality of Life;   radiotherapy;   SEER Program;   therapy
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Authors: Kent EE, Arora NK, Rowland JH, Bellizzi KM, Forsythe LP, Hamilton AS, Oakley-Girvan I, Beckjord EB, Aziz NM
Title: Health information needs and health-related quality of life in a diverse population of long-term cancer survivors.
Type: Journal Article
Date: 2012 Nov
Journal: Patient Educ Couns 89(2):345-52
Topic(s): Health-related Quality of Life;   Information Seeking;   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Breast;   Colorectal;   Corpus Uteri;   Ovary;   Prostate
Data Source/Project/Initiative(s): Follow-up Care Use among Survivors (FOCUS)
Keywords: Adult;   Aged;   Aged, 80 and over;   California;   Consumer Health Information;   Ethnic Groups;   ethnology;   Female;   Follow-Up Studies;   Health Services Accessibility;   Health Services Needs and Demand;   Health Status;   Healthcare Disparities;   Humans;   Logistic Models;   Male;   Middle Aged;   Needs Assessment;   Neoplasms;   Patient Education as Topic;   Population Surveillance;   psychology;   Quality of Health Care;   Quality of Life;   Questionnaires;   SEER Program;   Socioeconomic Factors;   Survivors;   Time Factors
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Authors: Reeve BB, Stover AM, Alfano CM, Smith AW, Ballard-Barbash R, Bernstein L, McTiernan A, Baumgartner KB, Piper BF
Title: The Piper Fatigue Scale-12 (PFS-12): psychometric findings and item reduction in a cohort of breast cancer survivors.
Type: Journal Article
Date: 2012 Nov
Journal: Breast Cancer Res Treat 136(1):9-20
Topic(s): Epidemiology Studies & Related Methods;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Breast Neoplasms;   classification;   Cognition;   complications;   epidemiology;   Fatigue;   Female;   Humans;   methods;   physiology;   physiopathology;   psychology;   Psychometrics;   Questionnaires;   Survivors;   therapy
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Authors: Bellizzi KM, Smith A, Schmidt S, Keegan TH, Zebrack B, Lynch CF, Deapen D, Shnorhavorian M, Tompkins BJ, Simon M, Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group
Title: Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult.
Type: Journal Article
Date: 2012 Oct 15
Journal: Cancer 118(20):5155-62
Topic(s): Economics of Cancer;   Health-related Quality of Life;   Survivorship
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study;   Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;   Adolescent Psychology;   Adult;   Body Image;   economics;   Female;   Goals;   Humans;   Interpersonal Relations;   Male;   Neoplasms;   Population Surveillance;   psychology;   Quality of Life;   Social Support;   Socioeconomic Factors;   Survivors;   Young Adult
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Authors: Keegan TH, Lichtensztajn DY, Kato I, Kent EE, Wu XC, West MM, Hamilton AS, Zebrack B, Bellizzi KM, Smith AW, AYA HOPE Study Collaborative Group
Title: Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.
Type: Journal Article
Date: 2012 Sep
Journal: J Cancer Surviv 6(3):239-50
Topic(s): Economics of Cancer;   Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Information Seeking;   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   diagnosis;   Female;   Health Care Surveys;   Health Services Accessibility;   Health Services Needs and Demand;   Humans;   Information Services;   Male;   Needs Assessment;   Neoplasms;   psychology;   Quality of Life;   Questionnaires;   Registries;   Survivors;   therapy;   Young Adult
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Authors: Parsons HM, Harlan LC, Lynch CF, Hamilton AS, Wu XC, Kato I, Schwartz SM, Smith AW, Keel G, Keegan TH
Title: Impact of cancer on work and education among adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2012 Jul 01
Journal: J Clin Oncol 30(19):2393-400
Topic(s): Economics of Cancer;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   Educational Status;   Employment;   Humans;   Multivariate Analysis;   Neoplasms;   psychology;   statistics & numerical data;   Survivors;   therapy;   Young Adult
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Authors: Pronk NP, Krebs-Smith SM, Galuska DA, Liu B, Kushner RF, Troiano RP, Clauser SB, Ballard-Barbash R, Smith AW
Title: Knowledge of energy balance guidelines and associated clinical care practices: the U.S. National Survey of Energy Balance Related Care among Primary Care Physicians.
Type: Journal Article
Date: 2012 Jul
Journal: Prev Med 55(1):28-33
Topic(s): Diet;   Guidance & Policy Research;   Health Care Systems;   Physical Activity;   Policy;   Preventive & Screening Services;   Prevention;   Risk Factors;   Weight Status
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Adolescent;   Adult;   Aged;   Body Mass Index;   Child;   Diet;   education;   Energy Intake;   Exercise;   Female;   Health Care Surveys;   Health Knowledge, Attitudes, Practice;   Humans;   Male;   Middle Aged;   Outcome and Process Assessment (Health Care);   Physician's Practice Patterns;   Physicians, Family;   Practice Guidelines as Topic;   Primary Health Care;   psychology;   Questionnaires;   Sex Distribution;   Socioeconomic Factors;   standards;   statistics & numerical data;   United States
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Authors: Alexander J, Prabhu Das I, Johnson TP
Title: Time issues in multilevel interventions for cancer treatment and prevention.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):42-8
Topic(s): Health Care Systems;   Preventive & Screening Services;   Prevention;   Quality of Care;   Research Methodology;   Screening;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Combined Modality Therapy;   Continuity of Patient Care;   Delivery of Health Care, Integrated;   Health Services Research;   Humans;   Neoplasms;   Organizational Innovation;   Patient Care Team;   Patient-Centered Care;   prevention & control;   Quality of Health Care;   Research Design;   standards;   therapy;   Time;   Time Factors;   trends;   United States
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Authors: Charns MP, Foster MK, Alligood EC, Benzer JK, Burgess JF Jr, Li D, McIntosh NM, Burness A, Partin MR, Clauser SB
Title: Multilevel interventions: measurement and measures.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):67-77
Topic(s): Health Care Systems;   Preventive & Screening Services;   Prevention;   Quality of Care;   Research Methodology;   Screening;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Cancer Care Facilities;   Confounding Factors (Epidemiology);   Continuity of Patient Care;   Delivery of Health Care, Integrated;   diagnosis;   Health Services Research;   Humans;   Interdisciplinary Communication;   methods;   Neoplasms;   Outcome and Process Assessment (Health Care);   Outcome Assessment (Health Care);   Patient Care Team;   prevention & control;   Quality of Health Care;   Research Design;   standards;   statistics & numerical data;   therapy;   trends;   United States
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Authors: Clauser SB, Taplin SH, Foster MK, Fagan P, Kaluzny AD
Title: Multilevel intervention research: lessons learned and pathways forward.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):127-33
Topic(s): Health Care Systems;   Preventive & Screening Services;   Prevention;   Quality of Care;   Research Methodology;   Screening;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Continuity of Patient Care;   Delivery of Health Care;   Delivery of Health Care, Integrated;   diagnosis;   Health Care Reform;   Health Policy;   Health Services Research;   Healthcare Disparities;   Humans;   Interdisciplinary Communication;   methods;   Neoplasms;   organization & administration;   Organizational Culture;   Patient Care Team;   Quality of Health Care;   Research Design;   standards;   therapy;   trends;   United States
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Authors: Edwards HM, Taplin SH, Chollette V, Clauser SB, Prabhu Das I, Kaluzny AD
Title: Summary of the multilevel interventions in health care conference.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):123-6
Topic(s): Health Care Systems;   Preventive & Screening Services;   Prevention;   Quality of Care;   Research Methodology;   Screening;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Congresses as Topic;   Continuity of Patient Care;   Delivery of Health Care;   Delivery of Health Care, Integrated;   diagnosis;   Health Policy;   Health Services Research;   Healthcare Disparities;   Humans;   Interdisciplinary Communication;   methods;   Neoplasms;   organization & administration;   Patient Care Team;   Publishing;   Quality of Health Care;   Research Design;   standards;   therapy;   trends;   United States
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Authors: Gorin SS, Badr H, Krebs P, Prabhu Das I
Title: Multilevel interventions and racial/ethnic health disparities.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):100-11
Topic(s): Health Care Systems;   Health Disparities;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Preventive & Screening Services;   Prevention;   Quality of Care;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Clinical Trials as Topic;   Confounding Factors (Epidemiology);   Continental Population Groups;   Continuity of Patient Care;   Delivery of Health Care, Integrated;   diagnosis;   economics;   Ethnic Groups;   Health Education;   Health Services Research;   Healthcare Disparities;   Humans;   Interdisciplinary Communication;   methods;   Neoplasms;   organization & administration;   Patient Care Team;   Quality of Health Care;   Research Design;   standards;   therapy;   trends;   United States
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Authors: Khoury MJ, Coates RJ, Fennell ML, Glasgow RE, Scheuner MT, Schully SD, Williams MS, Clauser SB
Title: Multilevel research and the challenges of implementing genomic medicine.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):112-20
Topic(s): Decision-making;   Genetics & Molecular Markers;   Guidance & Policy Research;   Health Care Systems;   Preventive & Screening Services;   Prevention;   Quality of Care;   Cancer Risk Assessment & Prediction;   Treatment
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Colorectal Neoplasms, Hereditary Nonpolyposis;   Continuity of Patient Care;   Delivery of Health Care, Integrated;   diagnosis;   economics;   Evidence-Based Medicine;   Genetic Testing;   genetics;   Genomics;   Health Policy;   Health Services Research;   Humans;   Individualized Medicine;   Interdisciplinary Communication;   Medicaid;   Medicare;   methods;   Mutation;   Neoplasms;   organization & administration;   Patient Care Team;   Physician's Practice Patterns;   Physicians;   Quality of Health Care;   Research Design;   standards;   therapy;   Translational Medical Research;   trends;   United States
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Authors: Taplin SH, Anhang Price R, Edwards HM, Foster MK, Breslau ES, Chollette V, Prabhu Das I, Clauser SB, Fennell ML, Zapka J
Title: Introduction: Understanding and influencing multilevel factors across the cancer care continuum.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):2-10
Topic(s): Health Care Systems;   Preventive & Screening Services;   Prevention;   Quality of Care;   Research Methodology;   Screening;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: adverse effects;   Combined Modality Therapy;   Continuity of Patient Care;   Decision Making;   diagnosis;   Disease Management;   Early Detection of Cancer;   Evidence-Based Medicine;   Health Services Accessibility;   Humans;   Individualized Medicine;   Interdisciplinary Communication;   Neoplasms;   Palliative Care;   Patient Care Team;   Patient Participation;   Patient Protection and Affordable Care Act;   Patient Safety;   Patient-Centered Care;   Physician's Practice Patterns;   Quality of Health Care;   Social Environment;   Socioeconomic Factors;   standards;   Terminal Care;   therapy;   Treatment Outcome;   trends;   United States
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Authors: Weiner BJ, Lewis MA, Clauser SB, Stitzenberg KB
Title: In search of synergy: strategies for combining interventions at multiple levels.
Type: Journal Article
Date: 2012 May
Journal: J Natl Cancer Inst Monogr 2012(44):34-41
Topic(s): Health Care Systems;   Quality of Care;   Research Methodology;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Multilevel Intervention Research
Keywords: Combined Modality Therapy;   Continuity of Patient Care;   Delivery of Health Care, Integrated;   diagnosis;   Effect Modifier, Epidemiologic;   Humans;   Models, Organizational;   Negotiating;   Neoplasms;   Patient Care Team;   Quality of Health Care;   Social Environment;   standards;   therapy;   trends;   United States
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Authors: Alfano CM, Imayama I, Neuhouser ML, Kiecolt-Glaser JK, Smith AW, Meeske K, McTiernan A, Bernstein L, Baumgartner KB, Ulrich CM, Ballard-Barbash R
Title: Fatigue, inflammation, and ω-3 and ω-6 fatty acid intake among breast cancer survivors.
Type: Journal Article
Date: 2012 Apr 20
Journal: J Clin Oncol 30(12):1280-7
Topic(s): Diet;   Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Genetics & Molecular Markers;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: administration & dosage;   Adult;   Aged;   analysis;   Analysis of Variance;   blood;   Breast Neoplasms;   C-Reactive Protein;   Carcinoma, Intraductal, Noninfiltrating;   Cohort Studies;   complications;   Dietary Supplements;   etiology;   Fatigue;   Fatty Acids, Omega-3;   Fatty Acids, Omega-6;   Female;   Follow-Up Studies;   Humans;   Inflammation;   Inflammation Mediators;   Logistic Models;   metabolism;   Middle Aged;   Odds Ratio;   pathology;   physiopathology;   Prospective Studies;   Risk Assessment;   Serum Amyloid A Protein;   Survivors;   therapy;   Treatment Outcome
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Authors: Kent EE, Parry C, Montoya MJ, Sender LS, Morris RA, Anton-Culver H
Title: "You're too young for this": adolescent and young adults' perspectives on cancer survivorship.
Type: Journal Article
Date: 2012 Mar
Journal: J Psychosoc Oncol 30(2):260-79
Topic(s): Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   Age Factors;   Cost of Illness;   Delayed Diagnosis;   diagnosis;   etiology;   Female;   Focus Groups;   Humans;   Infertility;   Interpersonal Relations;   Interviews as Topic;   Male;   Medication Adherence;   Neoplasms;   psychology;   Psychology;   Survivors;   Young Adult
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Authors: McDermott CL, Blough DK, Fedorenko CR, Arora NK, Zeliadt SB, Fairweather ME, Oakley-Girvan I, Van Den Eeden SK, Ramsey SD
Title: Complementary and alternative medicine use among newly diagnosed prostate cancer patients.
Type: Journal Article
Date: 2012 Jan
Journal: Support Care Cancer 20(1):65-73
Topic(s): Decision-making;   Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Patient-centered Communication;   Survivorship;   Treatment
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Aged;   Complementary Therapies;   Decision Making;   Follow-Up Studies;   Health Care Surveys;   Humans;   Male;   methods;   Middle Aged;   Neoplasm Staging;   Patient Satisfaction;   Prospective Studies;   Prostatic Neoplasms;   therapy
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Authors: Hesse BW, Arora NK, Khoury MJ
Title: Implications of Internet availability of genomic information for public health practice.
Type: Journal Article
Date: 2012
Journal: Public Health Genomics 15(3-4):201-8
Topic(s): Decision-making;   Genetics & Molecular Markers;   Health Care Systems;   Information Seeking;   Patient-centered Communication;   Risk Factors;   Cancer Risk Assessment & Prediction
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Access to Information;   Communication;   Genetic Testing;   Genome, Human;   Genomics;   Health Policy;   Humans;   Internet;   Medical Informatics;   methods;   Public Health;   Public Health Practice;   Risk;   Telemedicine;   Time Factors
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Authors: Yabroff KR, Zapka J, Klabunde CN, Yuan G, Buckman DW, Haggstrom D, Clauser SB, Miller J, Taplin SH
Title: Systems strategies to support cancer screening in U.S. primary care practice.
Type: Journal Article
Date: 2011 Dec
Journal: Cancer Epidemiol Biomarkers Prev 20(12):2471-9
Topic(s): Guidance & Policy Research;   Health Care Systems;   Preventive & Screening Services;   Screening
Tumor Site(s): Breast;   Cervical;   Colorectal;   Lung
Data Source/Project/Initiative(s): National Survey of PCPs' Recommendations & Practices for Breast, Cervical, Colorectal, & Lung Cancer Screening
Keywords: Adult;   Early Detection of Cancer;   Female;   Guideline Adherence;   Health Care Surveys;   Humans;   Male;   methods;   Middle Aged;   organization & administration;   Physician's Practice Patterns;   Physicians, Primary Care;   Primary Health Care;   standards;   United States
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Authors: Alfano CM, Lichstein KL, Vander Wal GS, Smith AW, Reeve BB, McTiernan A, Bernstein L, Baumgartner KB, Ballard-Barbash R
Title: Sleep duration change across breast cancer survivorship: associations with symptoms and health-related quality of life.
Type: Journal Article
Date: 2011 Nov
Journal: Breast Cancer Res Treat 130(1):243-54
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   Aged;   Breast Neoplasms;   diagnosis;   Female;   Humans;   Middle Aged;   Prevalence;   psychology;   Quality of Life;   Retrospective Studies;   Sleep;   Survivors
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Authors: Han PK, Klein WM, Arora NK
Title: Varieties of uncertainty in health care: a conceptual taxonomy.
Type: Journal Article
Date: 2011 Nov-Dec
Journal: Med Decis Making 31(6):828-38
Topic(s): Decision-making;   Health Care Systems;   Information Seeking;   Patient-centered Communication;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Decision Making;   Delivery of Health Care;   Evidence-Based Medicine;   Uncertainty
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Authors: Mitchell SA, Jacobsohn D, Thormann Powers KE, Carpenter PA, Flowers ME, Cowen EW, Schubert M, Turner ML, Lee SJ, Martin P, Bishop MR, Baird K, Bolaños-Meade J, Boyd K, Fall-Dickson JM, Gerber LH, Guadagnini JP, Imanguli M, Krumlauf MC, Lawley L, Li L, Reeve BB, Clayton JA, Vogelsang GB, Pavletic SZ
Title: A multicenter pilot evaluation of the National Institutes of Health chronic graft-versus-host disease (cGVHD) therapeutic response measures: feasibility, interrater reliability, and minimum detectable change.
Type: Journal Article
Date: 2011 Nov
Journal: Biol Blood Marrow Transplant 17(11):1619-29
Topic(s): Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   adverse effects;   Aged;   Child;   Child, Preschool;   Chronic Disease;   diagnosis;   education;   Female;   Graft vs Host Disease;   Hematology;   Humans;   Leukemia;   Lymphoma;   Male;   Middle Aged;   Multiple Myeloma;   National Institutes of Health (U.S.);   Pilot Projects;   Prospective Studies;   Stem Cell Transplantation;   surgery;   therapy;   United States;   Young Adult
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Authors: Khoury MJ, Clauser SB, Freedman AN, Gillanders EM, Glasgow RE, Klein WM, Schully SD
Title: Population sciences, translational research, and the opportunities and challenges for genomics to reduce the burden of cancer in the 21st century.
Type: Journal Article
Date: 2011 Oct
Journal: Cancer Epidemiol Biomarkers Prev 20(10):2105-14
Topic(s): Genetics & Molecular Markers;   Guidance & Policy Research;   Health Care Systems;   Quality of Care;   Research Methodology;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Delivery of Health Care;   Evidence-Based Medicine;   Genetics, Population;   Genomics;   history;   History, 21st Century;   Humans;   Preventive Medicine;   Translational Medical Research
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Authors: Beckjord EB, Arora NK, Bellizzi K, Hamilton AS, Rowland JH
Title: Sexual well-being among survivors of non-Hodgkin lymphoma.
Type: Journal Article
Date: 2011 Sep
Journal: Oncol Nurs Forum 38(5):E351-9
Topic(s): Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Patient-centered Communication;   Survivorship;   Treatment
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study;   Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adult;   Aged;   Cross-Sectional Studies;   Female;   Humans;   Lymphoma, Non-Hodgkin;   Male;   Middle Aged;   Personal Satisfaction;   psychology;   Quality of Life;   Sexual Behavior;   Sexual Dysfunctions, Psychological;   statistics & numerical data;   Survivors
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Authors: Harlan LC, Lynch CF, Keegan TH, Hamilton AS, Wu XC, Kato I, West MM, Cress RD, Schwartz SM, Smith AW, Deapen D, Stringer SM, Potosky AL, AYA HOPE Study Collaborative Group
Title: Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study.
Type: Journal Article
Date: 2011 Sep
Journal: J Cancer Surviv 5(3):305-14
Topic(s): Economics of Cancer;   Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Quality of Care;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study;   Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;   Adult;   Algorithms;   Continuity of Patient Care;   Data Collection;   Female;   Follow-Up Studies;   Humans;   Male;   mortality;   Neoplasms;   Patient Participation;   Patient Selection;   Psychology;   psychology;   Quality of Life;   rehabilitation;   SEER Program;   statistics & numerical data;   Survivors;   Young Adult
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Authors: Basch EM, Reeve BB, Mitchell SA, Clauser SB, Minasian L, Sit L, Chilukuri R, Baumgartner P, Rogak L, Blauel E, Abernethy AP, Bruner D
Title: Electronic toxicity monitoring and patient-reported outcomes.
Type: Journal Article
Date: 2011 Jul-Aug
Journal: Cancer J 17(4):231-4
Topic(s): Decision-making;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: adverse effects;   Antineoplastic Agents;   Computer Communication Networks;   Drug Monitoring;   drug therapy;   Humans;   methods;   Neoplasms;   Research Report;   Software;   therapeutic use;   Treatment Outcome
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Authors: Huang TT, Borowski LA, Liu B, Galuska DA, Ballard-Barbash R, Yanovski SZ, Olster DH, Atienza AA, Smith AW
Title: Pediatricians' and family physicians' weight-related care of children in the U.S.
Type: Journal Article
Date: 2011 Jul
Journal: Am J Prev Med 41(1):24-32
Topic(s): Diet;   Early Life Factors;   Health Care Systems;   Physical Activity;   Preventive & Screening Services;   Prevention;   Risk Factors;   Weight Status
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Adolescent;   Body Weight;   Child;   Child, Preschool;   Cross-Sectional Studies;   Diet;   Family Practice;   Female;   Health Care Surveys;   Humans;   Male;   methods;   Middle Aged;   Motor Activity;   Obesity;   organization & administration;   Pediatrics;   Physician's Practice Patterns;   Physicians, Family;   prevention & control;   Primary Health Care;   statistics & numerical data;   therapy;   United States
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Authors: Smith AW, Borowski LA, Liu B, Galuska DA, Signore C, Klabunde C, Huang TT, Krebs-Smith SM, Frank E, Pronk N, Ballard-Barbash R
Title: U.S. primary care physicians' diet-, physical activity-, and weight-related care of adult patients.
Type: Journal Article
Date: 2011 Jul
Journal: Am J Prev Med 41(1):33-42
Topic(s): Diet;   Health Care Systems;   Monitoring Risk Factors;   Physical Activity;   Preventive & Screening Services;   Prevention;   Risk Factors;   Weight Status
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): National Survey of Energy Balance-related Care among Primary Care Physicians
Keywords: Adult;   Body Weight;   Diet;   Female;   Health Care Surveys;   Humans;   Male;   methods;   Middle Aged;   Motor Activity;   Obesity;   Overweight;   Physician's Practice Patterns;   Primary Health Care;   statistics & numerical data;   therapy;   United States
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Authors: Clauser SB, Wagner EH, Aiello Bowles EJ, Tuzzio L, Greene SM
Title: Improving modern cancer care through information technology.
Type: Journal Article
Date: 2011 May
Journal: Am J Prev Med 40(5 Suppl 2):S198-207
Topic(s): Decision-making;   Health Care Systems;   Health-related Quality of Life;   Patient-centered Communication;   Quality of Care
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Communication;   Cooperative Behavior;   Humans;   Medical Informatics;   Neoplasms;   organization & administration;   Patient Participation;   Patient-Centered Care;   Quality of Health Care;   therapy
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Authors: Shaikh AR, Prabhu Das I, Vinson CA, Spring B
Title: Cyberinfrastructure for consumer health.
Type: Journal Article
Date: 2011 May
Journal: Am J Prev Med 40(5 Suppl 2):S91-6
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Computer Communication Networks;   Consumer Health Information;   Delivery of Health Care;   Humans;   Internet;   Medical Informatics;   organization & administration
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Authors: Arora NK, Reeve BB, Hays RD, Clauser SB, Oakley-Girvan I
Title: Assessment of quality of cancer-related follow-up care from the cancer survivor's perspective.
Type: Journal Article
Date: 2011 Apr 01
Journal: J Clin Oncol 29(10):1280-9
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Patient-centered Communication;   Quality of Care;   Survivorship
Tumor Site(s): Colorectal;   Leukemia;   Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Aged;   Attitude of Health Personnel;   California;   Colorectal Neoplasms;   Communication;   Cross-Sectional Studies;   Female;   Health Knowledge, Attitudes, Practice;   Health Promotion;   Humans;   Leukemia;   Linear Models;   Male;   Middle Aged;   mortality;   Patient Satisfaction;   Patient-Centered Care;   Perception;   Physician-Patient Relations;   psychology;   Quality of Health Care;   Questionnaires;   Registries;   Survivors;   therapy;   Time Factors;   Urinary Bladder Neoplasms
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Authors: McCormack LA, Treiman K, Rupert D, Williams-Piehota P, Nadler E, Arora NK, Lawrence W, Street RL Jr
Title: Measuring patient-centered communication in cancer care: a literature review and the development of a systematic approach.
Type: Journal Article
Date: 2011 Apr
Journal: Soc Sci Med 72(7):1085-95
Topic(s): Decision-making;   Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Patient-centered Communication;   Quality of Care;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;   Decision Making;   Emotions;   Health Knowledge, Attitudes, Practice;   Humans;   National Cancer Institute (U.S.);   Neoplasms;   Professional Role;   Professional-Patient Relations;   Qualitative Research;   Self Care;   therapy;   United States
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Authors: Zapka JM, Klabunde CN, Arora NK, Yuan G, Smith JL, Kobrin SC
Title: Physicians' colorectal cancer screening discussion and recommendation patterns.
Type: Journal Article
Date: 2011 Mar
Journal: Cancer Epidemiol Biomarkers Prev 20(3):509-21
Topic(s): Decision-making;   Guidance & Policy Research;   Health Care Systems;   Information Seeking;   Preventive & Screening Services;   Screening
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): National Survey of PCPs' Recommendations & Practices for Breast, Cervical, Colorectal, & Lung Cancer Screening
Keywords: Adult;   Colorectal Neoplasms;   diagnosis;   Early Detection of Cancer;   Female;   Health Care Surveys;   Humans;   Male;   methods;   Middle Aged;   Physician's Practice Patterns;   Physicians, Primary Care;   prevention & control;   Primary Health Care;   statistics & numerical data
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Authors: Duggan C, Irwin ML, Xiao L, Henderson KD, Smith AW, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R, McTiernan A
Title: Associations of insulin resistance and adiponectin with mortality in women with breast cancer.
Type: Journal Article
Date: 2011 Jan 01
Journal: J Clin Oncol 29(1):32-9
Topic(s): Diet;   Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Genetics & Molecular Markers;   Outcomes (All);   Clinical Outcomes;   Risk Factors;   Survivorship;   Weight Status
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adiponectin;   Adult;   Aged;   Aged, 80 and over;   blood;   Blood Glucose;   Body Mass Index;   Body Weight;   Breast Neoplasms;   Cohort Studies;   complications;   Female;   Humans;   Hyperinsulinism;   Insulin;   Insulin Resistance;   metabolism;   Middle Aged;   mortality;   Obesity;   pathology;   Prospective Studies;   Risk Factors
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Authors: Irwin ML, Duggan C, Wang CY, Smith AW, McTiernan A, Baumgartner RN, Baumgartner KB, Bernstein L, Ballard-Barbash R
Title: Fasting C-peptide levels and death resulting from all causes and breast cancer: the health, eating, activity, and lifestyle study.
Type: Journal Article
Date: 2011 Jan 01
Journal: J Clin Oncol 29(1):47-53
Topic(s): Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Genetics & Molecular Markers;   Outcomes (All);   Clinical Outcomes;   Weight Status
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: blood;   Breast Neoplasms;   C-Peptide;   Diabetes Mellitus, Type 2;   etiology;   Fasting;   Female;   Humans;   Insulin;   Insulin Resistance;   Life Style;   Middle Aged;   mortality;   Motor Activity;   pathology;   physiology;   Prognosis;   Prospective Studies;   Risk Factors;   secretion
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Authors: Bruner DW, Hanisch LJ, Reeve BB, Trotti AM, Schrag D, Sit L, Mendoza TR, Minasian L, O'Mara A, Denicoff AM, Rowland JH, Montello M, Geoghegan C, Abernethy AP, Clauser SB, Castro K, Mitchell SA, Burke L, Trentacosti AM, Basch EM
Title: Stakeholder perspectives on implementing the National Cancer Institute's patient-reported outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Type: Journal Article
Date: 2011
Journal: Transl Behav Med 1(1):110-22
Topic(s): Decision-making;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE)
Keywords: Patient-reported outcomes;   Symptoms, adverse events;   Oncology;   Cancer, Clinical trials;   Toxicity, safety;   Tolerability;   Comparative effectiveness research;   Cooperative groups;   National Cancer Institute
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Authors: Ma H, Sullivan-Halley J, Smith AW, Neuhouser ML, Alfano CM, Meeske K, George SM, McTiernan A, McKean-Cowdin R, Baumgartner KB, Ballard-Barbash R, Bernstein L
Title: Estrogenic botanical supplements, health-related quality of life, fatigue, and hormone-related symptoms in breast cancer survivors: a HEAL study report.
Type: Journal Article
Date: 2011
Journal: BMC Complement Altern Med 11():109
Topic(s): Diet;   Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Health Behaviors & Survivorship;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   adverse effects;   Breast Neoplasms;   complications;   Dietary Supplements;   drug effects;   drug therapy;   etiology;   Fatigue;   Female;   Hot Flashes;   Humans;   methods;   Middle Aged;   physiopathology;   Phytoestrogens;   Phytotherapy;   Plant Preparations;   Prospective Studies;   Quality of Life;   Survivors;   Sweating;   therapeutic use;   utilization
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Authors: Wagner EH, Aiello Bowles EJ, Greene SM, Tuzzio L, Wiese CJ, Kirlin B, Clauser SB
Title: The quality of cancer patient experience: perspectives of patients, family members, providers and experts.
Type: Journal Article
Date: 2010 Dec
Journal: Qual Saf Health Care 19(6):484-9
Topic(s): Decision-making;   Economics of Cancer;   Guidance & Policy Research;   Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Information Seeking;   Patient-centered Communication;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Family;   Focus Groups;   Health Personnel;   Humans;   Neoplasms;   Patient Satisfaction;   psychology;   Quality of Health Care;   therapy;   United States
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Authors: Mitchell SA, Fisher CA, Hastings CE, Silverman LB, Wallen GR
Title: A thematic analysis of theoretical models for translational science in nursing: mapping the field.
Type: Journal Article
Date: 2010 Nov-Dec
Journal: Nurs Outlook 58(6):287-300
Topic(s): Decision-making;   Guidance & Policy Research;   Health Care Systems;   Information Seeking;   Outcomes Research Measures & Methods;   Quality of Care;   Research Methodology
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Diffusion of Innovation;   Evidence-Based Nursing;   Humans;   Models, Theoretical;   Nursing Research;   Smoking Cessation;   Translational Medical Research
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Authors: Keating NL, Beth Landrum M, Arora NK, Malin JL, Ganz PA, van Ryn M, Weeks JC
Title: Cancer patients' roles in treatment decisions: do characteristics of the decision influence roles?
Type: Journal Article
Date: 2010 Oct 01
Journal: J Clin Oncol 28(28):4364-70
Topic(s): Decision-making;   Health Care Systems;   Information Seeking;   Treatment
Tumor Site(s): Colorectal;   Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS);   Cancer Research Network (CRN)
Keywords: Adult;   Aged;   Aged, 80 and over;   Cohort Studies;   Colorectal Neoplasms;   Decision Making;   Female;   Humans;   Logistic Models;   Lung Neoplasms;   Male;   Middle Aged;   Patient Participation;   Patient Satisfaction;   psychology;   Role;   therapy;   United States
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Authors: Flynn KE, Shelby RA, Mitchell SA, Fawzy MR, Hardy NC, Husain AM, Keefe FJ, Krystal AD, Porter LS, Reeve BB, Weinfurt KP
Title: Sleep-wake functioning along the cancer continuum: focus group results from the Patient-Reported Outcomes Measurement Information System (PROMIS(®)).
Type: Journal Article
Date: 2010 Oct
Journal: Psychooncology 19(10):1086-93
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Adult;   Aged;   Aged, 80 and over;   complications;   Female;   Focus Groups;   Humans;   Information Systems;   Male;   Middle Aged;   Neoplasms;   Outcome Assessment (Health Care);   physiopathology;   psychology;   Qualitative Research;   Quality of Life;   Questionnaires;   Self Disclosure;   Sleep Disorders, Circadian Rhythm
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Authors: Mitchell SA
Title: Framing the challenges of cancer rehabilitation.
Type: Journal Article
Date: 2010 Oct
Journal: Oncology (Williston Park) 24(10 Suppl):33-4
Topic(s): Guidance & Policy Research;   Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Health Services Needs and Demand;   Humans;   Neoplasms;   rehabilitation;   United States
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Authors: Ayanian JZ, Zaslavsky AM, Arora NK, Kahn KL, Malin JL, Ganz PA, van Ryn M, Hornbrook MC, Kiefe CI, He Y, Urmie JM, Weeks JC, Harrington DP
Title: Patients' experiences with care for lung cancer and colorectal cancer: findings from the Cancer Care Outcomes Research and Surveillance Consortium.
Type: Journal Article
Date: 2010 Sep 20
Journal: J Clin Oncol 28(27):4154-61
Topic(s): Health Care Systems;   Health Disparities;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care
Tumor Site(s): Colorectal;   Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS);   Cancer Research Network (CRN)
Keywords: Adult;   African Americans;   Aged;   Asian Americans;   Colorectal Neoplasms;   Communication;   ethnology;   European Continental Ancestry Group;   Female;   Health Care Surveys;   Health Services Research;   Health Status Disparities;   Healthcare Disparities;   Hispanic Americans;   Humans;   Language;   Linear Models;   Logistic Models;   Lung Neoplasms;   Male;   Middle Aged;   Outcome and Process Assessment (Health Care);   Patient Care Team;   Patient Satisfaction;   Patients;   Physician-Patient Relations;   psychology;   Quality of Health Care;   Questionnaires;   statistics & numerical data;   therapy;   Treatment Outcome;   United States;   Young Adult
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Authors: George SM, Neuhouser ML, Mayne ST, Irwin ML, Albanes D, Gail MH, Alfano CM, Bernstein L, McTiernan A, Reedy J, Smith AW, Ulrich CM, Ballard-Barbash R
Title: Postdiagnosis diet quality is inversely related to a biomarker of inflammation among breast cancer survivors.
Type: Journal Article
Date: 2010 Sep
Journal: Cancer Epidemiol Biomarkers Prev 19(9):2220-8
Topic(s): Diet;   Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Genetics & Molecular Markers;   Physical Activity;   Survivorship;   Weight Status
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL);   Healthy Eating Index (HEI)
Keywords: Adiponectin;   blood;   Breast Neoplasms;   C-Reactive Protein;   Cohort Studies;   Diet;   Female;   Humans;   Inflammation;   Leptin;   metabolism;   Middle Aged;   Motor Activity;   Prognosis;   Prospective Studies;   Quality of Life;   Questionnaires;   Serum Amyloid A Protein;   Survivors;   Tumor Markers, Biological
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Authors: Wang X, Baldwin S, Wainer H, Bradlow ET, Reeve BB, Smith AW, Bellizzi KM, Baumgartner KB
Title: Using Testlet Response Theory to analyze data from a survey of attitude change among breast cancer survivors.
Type: Journal Article
Date: 2010 Aug 30
Journal: Stat Med 29(19):2028-44
Topic(s): Cognitive Methods in Survey Research;   Health Disparities;   Health-related Quality of Life;   Outcomes Research Measures & Methods;   Research Methodology;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Attitude to Health;   Bayes Theorem;   Breast Neoplasms;   Data Interpretation, Statistical;   Female;   Health Surveys;   Humans;   Neoplasm Recurrence, Local;   prevention & control;   psychology;   Psychometrics;   Survivors;   Tamoxifen;   therapeutic use
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Authors: Zeliadt SB, Ramsey SD, Van Den Eeden SK, Hamilton AS, Oakley-Girvan I, Penson DF, Fairweather ME, Arora NK, Potosky AL
Title: Patient recruitment methods to evaluate treatment decision making for localized prostate cancer.
Type: Journal Article
Date: 2010 Aug
Journal: Am J Clin Oncol 33(4):381-6
Topic(s): Cognitive Methods in Survey Research;   Decision-making;   Health Care Systems;   Information Seeking;   Research Methodology;   Treatment
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Aged;   California;   Costs and Cost Analysis;   Data Collection;   Decision Making;   Humans;   Male;   Middle Aged;   Odds Ratio;   Patient Selection;   Prostatic Neoplasms;   therapy
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Authors:
Title: Patient-Reported Outcomes Measurement Information System (PROMIS)
Type: Report
Date: 2010 Jul
Report: NCI Pub. No. P233
Topic(s): Cognitive Methods in Survey Research;   Economics of Cancer;   Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Quality of Care;   Research Methodology;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: none
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Authors: Ramsey SD, Zeliadt SB, Arora NK, Blough DK, Penson DF, Oakley-Girvan I, Hamilton AS, Van Den Eeden SK, Fedorenko CR, Potosky AL
Title: Unanticipated and underappreciated outcomes during management of local stage prostate cancer: a prospective survey.
Type: Journal Article
Date: 2010 Jul
Journal: J Urol 184(1):120-5
Topic(s): Decision-making;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Aged;   Choice Behavior;   Decision Making;   Factor Analysis, Statistical;   Focus Groups;   Humans;   Male;   Middle Aged;   Neoplasm Staging;   pathology;   Patient Satisfaction;   Prospective Studies;   Prostatic Neoplasms;   Questionnaires;   therapy;   Treatment Outcome
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Authors: Rogers SO Jr, Gray SW, Landrum MB, Klabunde CN, Kahn KL, Fletcher RH, Clauser S, Tisnado D, Doucette W, Keating NL
Title: Variations in surgeon treatment recommendations for lobectomy in early-stage non-small-cell lung cancer by patient age and comorbidity.
Type: Journal Article
Date: 2010 Jun
Journal: Ann Surg Oncol 17(6):1581-8
Topic(s): Decision-making;   Guidance & Policy Research;   Health Care Systems;   Health Disparities;   Outcomes (All);   Clinical Outcomes;   Quality of Care;   Treatment
Tumor Site(s): Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS);   Cancer Research Network (CRN)
Keywords: Adult;   adverse effects;   Age Factors;   Algorithms;   Boston;   Carcinoma, Non-Small-Cell Lung;   Comorbidity;   complications;   Decision Making;   epidemiology;   Female;   General Surgery;   Health Care Surveys;   Humans;   Logistic Models;   Lung Neoplasms;   Male;   Middle Aged;   pathology;   Physician's Practice Patterns;   Pneumonectomy;   Practice Guidelines as Topic;   Pulmonary Disease, Chronic Obstructive;   Questionnaires;   Regression Analysis;   Risk Factors;   Severity of Illness Index;   Smoking;   statistics & numerical data;   surgery;   Thoracic Surgery
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Authors: Bellizzi KM, Smith AW, Reeve BB, Alfano CM, Bernstein L, Meeske K, Baumgartner KB, Ballard-Barbash RR
Title: Posttraumatic growth and health-related quality of life in a racially diverse cohort of breast cancer survivors.
Type: Journal Article
Date: 2010 May
Journal: J Health Psychol 15(4):615-26
Topic(s): Health Disparities;   Health-related Quality of Life;   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adaptation, Psychological;   Adult;   Aged;   Breast Neoplasms;   Cohort Studies;   diagnosis;   epidemiology;   Ethnic Groups;   etiology;   Female;   Health Status;   Humans;   Middle Aged;   Neoplasm Staging;   psychology;   Quality of Life;   Questionnaires;   statistics & numerical data;   Stress Disorders, Post-Traumatic;   Survivors
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Authors: Mularski RA, Campbell ML, Asch SM, Reeve BB, Basch E, Maxwell TL, Hoverman JR, Cuny J, Clauser SB, Snyder C, Seow H, Wu AW, Dy S
Title: A review of quality of care evaluation for the palliation of dyspnea.
Type: Journal Article
Date: 2010 Mar 15
Journal: Am J Respir Crit Care Med 181(6):534-8
Topic(s): Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Quality of Care;   Research Methodology
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: diagnosis;   Dyspnea;   Humans;   methods;   Palliative Care;   Quality of Health Care;   Severity of Illness Index;   therapy
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Authors: Waters EA, Arora NK, Klein WM, Han PK
Title: Perceived risk, trust and health-related quality of life among cancer survivors.
Type: Journal Article
Date: 2010 Feb
Journal: Ann Behav Med 39(1):91-7
Topic(s): Decision-making;   Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Patient-centered Communication;   Quality of Care;   Survivorship
Tumor Site(s): Colorectal;   Leukemia;   Urinary Bladder
Data Source/Project/Initiative(s): Assessment of Patients' Experience of Cancer Care (APECC) Study
Keywords: Adult;   Aged;   Cross-Sectional Studies;   Female;   Follow-Up Studies;   Health Status;   Humans;   Male;   Middle Aged;   Neoplasms;   Physician's Role;   Physician-Patient Relations;   psychology;   Quality of Life;   Risk Assessment;   Survivors;   therapy;   Treatment Outcome;   Trust
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Authors: Waters EA, Cronin KA, Graubard BI, Han PK, Freedman AN
Title: Prevalence of tamoxifen use for breast cancer chemoprevention among U.S. women.
Type: Journal Article
Date: 2010 Feb
Journal: Cancer Epidemiol Biomarkers Prev 19(2):443-6
Topic(s): Decision-making;   Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Information Seeking;   Monitoring Risk Factors;   Pharmacosurveillance;   Preventive & Screening Services;   Prevention;   Risk Factors;   Surveillance
Tumor Site(s): Breast
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;   Aged;   Breast Neoplasms;   epidemiology;   Female;   Humans;   methods;   Middle Aged;   Prevalence;   prevention & control;   Primary Prevention;   Selective Estrogen Receptor Modulators;   Tamoxifen;   therapeutic use;   United States
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Authors: Clayman ML, Manganello JA, Viswanath K, Hesse BW, Arora NK
Title: Providing health messages to Hispanics/Latinos: understanding the importance of language, trust in health information sources, and media use.
Type: Journal Article
Date: 2010
Journal: J Health Commun 15 Suppl 3():252-63
Topic(s): Health Disparities;   Information Seeking;   Prevention
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adult;   Communication Barriers;   Consumer Health Information;   Female;   Health Communication;   Health Promotion;   Health Surveys;   Hispanic Americans;   Humans;   Internet;   Male;   Mass Media;   methods;   Middle Aged;   Multilingualism;   Newspapers;   Periodicals as Topic;   psychology;   statistics & numerical data;   Trust;   United States;   utilization
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Authors: Fennell ML, Das IP, Clauser S, Petrelli N, Salner A
Title: The organization of multidisciplinary care teams: modeling internal and external influences on cancer care quality.
Type: Journal Article
Date: 2010
Journal: J Natl Cancer Inst Monogr 2010(40):72-80
Topic(s): Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Palliative & End-of-life Care;   Quality of Care;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cancer Care Facilities;   Continuity of Patient Care;   Cooperative Behavior;   diagnosis;   Forecasting;   Group Processes;   Health Services Research;   Humans;   Interdisciplinary Communication;   Interprofessional Relations;   Models, Theoretical;   Neoplasms;   organization & administration;   Outcome and Process Assessment (Health Care);   Patient Care Team;   Patient-Centered Care;   Physician-Patient Relations;   Quality of Health Care;   therapy
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Authors: Haggstrom DA, Clauser SB, Taplin SH
Title: The health disparities cancer collaborative: a case study of practice registry measurement in a quality improvement collaborative.
Type: Journal Article
Date: 2010
Journal: Implement Sci 5():42
Topic(s): Health Care Systems;   Health Disparities;   Preventive & Screening Services;   Research Methodology;   Screening
Tumor Site(s): Breast;   Cervical;   Colorectal
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Reeve BB
Title: Meet a test user: Meet Dr. Bryce B. Reeve
Type: Book Chapter
Date: 2010
Book Editors: Cohen RJ, Swerdlik M
Book Title: Psychological Testing and Assessment: An Introduction to Tests and Measurement
ISBN: 9780073129099External Web Site Policy
Topic(s): Cognitive Methods in Survey Research;   Research Methodology
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Taplin SH, Clauser S, Rodgers AB, Breslau E, Rayson D
Title: Interfaces across the cancer continuum offer opportunities to improve the process of care.
Type: Journal Article
Date: 2010
Journal: J Natl Cancer Inst Monogr 2010(40):104-10
Topic(s): Decision-making;   Economics of Cancer;   Guidance & Policy Research;   Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Patient-centered Communication;   Preventive & Screening Services;   Prevention;   Quality of Care;   Research Methodology;   Screening;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Canada;   Cancer Care Facilities;   Continuity of Patient Care;   Forecasting;   Health Services Research;   Humans;   Interdisciplinary Communication;   Medical Oncology;   methods;   Neoplasms;   organization & administration;   Patient Care Management;   Patient Care Team;   Patient-Centered Care;   Primary Health Care;   Quality of Health Care;   Research Design;   Social Environment;   therapy;   United States
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Authors: Han PK, Moser RP, Klein WM, Beckjord EB, Dunlavy AC, Hesse BW
Title: Predictors of perceived ambiguity about cancer prevention recommendations: sociodemographic factors and mass media exposures.
Type: Journal Article
Date: 2009 Dec
Journal: Health Commun 24(8):764-72
Topic(s): Decision-making;   Information Seeking;   Prevention;   Preventive & Screening Services
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;   Adult;   Aged;   Colorectal Neoplasms;   Consumer Health Information;   Female;   Health Education;   Health Knowledge, Attitudes, Practice;   Humans;   Lung Neoplasms;   Male;   Mass Media;   Middle Aged;   Neoplasms;   prevention & control;   Skin Neoplasms;   Socioeconomic Factors;   statistics & numerical data;   Young Adult
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Authors: Reyna VF, Nelson WL, Han PK, Dieckmann NF
Title: How numeracy influences risk comprehension and medical decision making.
Type: Journal Article
Date: 2009 Nov
Journal: Psychol Bull 135(6):943-73
Topic(s): Decision-making;   Health Disparities;   Information Seeking;   Patient-centered Communication;   Prevention;   Research Methodology;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Comprehension;   Decision Making;   Fuzzy Logic;   Health Behavior;   Humans;   Individuality;   Judgment;   Models, Theoretical;   Probability Learning;   Problem Solving;   Risk-Taking;   Vulnerable Populations
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Authors: Clauser SB
Title: National Cancer Institute partnerships in quality-of-care research.
Type: Journal Article
Date: 2009 Oct
Journal: Cancer Control 16(4):283-92
Topic(s): Decision-making;   Guidance & Policy Research;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Health-related Quality of Life;   Outcomes Research Measures & Methods;   Patient-centered Communication;   Quality of Care;   Research Methodology;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Humans;   Medical Oncology;   methods;   National Cancer Institute (U.S.);   Neoplasms;   organization & administration;   Quality Assurance, Health Care;   Research;   standards;   therapy;   United States;   United States Agency for Healthcare Research and Quality
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Authors: Han PK, Reeve BB, Moser RP, Klein WM
Title: Aversion to ambiguity regarding medical tests and treatments: measurement, prevalence, and relationship to sociodemographic factors.
Type: Journal Article
Date: 2009 Sep
Journal: J Health Commun 14(6):556-72
Topic(s): Decision-making;   Health Care Systems;   Health Disparities;   Patient-centered Communication;   Preventive & Screening Services;   Research Methodology;   Screening
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;   Aged;   Analysis of Variance;   Data Collection;   diagnosis;   Female;   Health Knowledge, Attitudes, Practice;   Humans;   Income;   Male;   Mass Screening;   Middle Aged;   Neoplasms;   Patient Acceptance of Health Care;   Prevalence;   psychology;   Questionnaires;   Reproducibility of Results;   Socioeconomic Factors;   statistics & numerical data;   United States
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Authors: Klabunde CN, Ambs A, Keating NL, He Y, Doucette WR, Tisnado D, Clauser S, Kahn KL
Title: The role of primary care physicians in cancer care.
Type: Journal Article
Date: 2009 Sep
Journal: J Gen Intern Med 24(9):1029-36
Topic(s): Decision-making;   Health Care Systems;   Palliative & End-of-life Care;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Colorectal;   Lung
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS);   Cancer Research Network (CRN)
Keywords: Adult;   Aged;   Attitude of Health Personnel;   Continuity of Patient Care;   Data Collection;   Female;   Humans;   Male;   Medical Oncology;   methods;   Middle Aged;   Neoplasms;   Physician's Role;   Physician-Patient Relations;   Physicians, Family;   therapy;   trends
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Authors: Ramsey SD, Zeliadt SB, Arora NK, Potosky AL, Blough DK, Hamilton AS, Van Den Eeden SK, Oakley-Girvan I, Penson DF
Title: Access to information sources and treatment considerations among men with local stage prostate cancer.
Type: Journal Article
Date: 2009 Sep
Journal: Urology 74(3):509-15
Topic(s): Decision-making;   Health Care Systems;   Information Seeking;   Treatment
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): none
Keywords: Access to Information;   Aged;   Humans;   Male;   Middle Aged;   Neoplasm Staging;   pathology;   Prospective Studies;   Prostatic Neoplasms;   therapy
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Authors: Reeve BB, Potosky AL, Smith AW, Han PK, Hays RD, Davis WW, Arora NK, Haffer SC, Clauser SB
Title: Impact of cancer on health-related quality of life of older Americans.
Type: Journal Article
Date: 2009 Jun 16
Journal: J Natl Cancer Inst 101(12):860-8
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;   Analysis of Variance;   Benchmarking;   Case-Control Studies;   Comorbidity;   Cost of Illness;   epidemiology;   Female;   Health Status;   Health Surveys;   Humans;   Male;   Medical Record Linkage;   Medicare;   Mental Health;   Neoplasms;   Prospective Studies;   psychology;   Quality of Life;   SEER Program;   Severity of Illness Index;   therapy;   United States
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Authors: Mitchell SA, Reeve BB
Title: Chapter 30. Quality of life assessments
Type: Book Chapter
Date: 2009 Jun
Book Editors: Vogelsang GB, Pavletic SZ
Book Title: Chronic Graft Versus Host Disease: Interdisciplinary Management
ISBN: 0521884233External Web Site Policy
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Jeffery DD, Tzeng JP, Keefe FJ, Porter LS, Hahn EA, Flynn KE, Reeve BB, Weinfurt KP
Title: Initial report of the cancer Patient-Reported Outcomes Measurement Information System (PROMIS) sexual function committee: review of sexual function measures and domains used in oncology.
Type: Journal Article
Date: 2009 Mar 15
Journal: Cancer 115(6):1142-53
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: epidemiology;   Female;   Health Surveys;   Humans;   Male;   National Institutes of Health (U.S.);   Neoplasms;   Outcome Assessment (Health Care);   Psychometrics;   Quality of Life;   Questionnaires;   Research Design;   Sexual Behavior;   Sexual Dysfunction, Physiological;   Survivors;   therapy;   United States
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Authors: Bellizzi KM, Rowland JH, Arora NK, Hamilton AS, Miller MF, Aziz NM
Title: Physical activity and quality of life in adult survivors of non-Hodgkin's lymphoma.
Type: Journal Article
Date: 2009 Feb 20
Journal: J Clin Oncol 27(6):960-6
Topic(s): Health Behaviors & Survivorship;   Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Patient-centered Communication;   Physical Activity;   Survivorship
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Aged;   Cross-Sectional Studies;   epidemiology;   Female;   Humans;   Lymphoma, Non-Hodgkin;   Male;   Middle Aged;   Motor Activity;   Prevalence;   Quality of Life;   rehabilitation;   Survivors
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Authors: Arora NK
Title: Importance of patient-centered care in enhancing patient well-being: a cancer survivor's perspective.
Type: Journal Article
Date: 2009 Feb
Journal: Qual Life Res 18(1):1-4
Topic(s): Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Patient-centered Communication;   Quality of Care;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Anecdotes as Topic;   diagnosis;   drug therapy;   Humans;   Neoplasms;   Patient Satisfaction;   Patient-Centered Care;   Physician-Patient Relations;   psychology;   Quality of Health Care;   Quality of Life;   Survivors
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Authors: Arora NK, Gustafson DH
Title: Perceived helpfulness of physicians' communication behavior and breast cancer patients' level of trust over time.
Type: Journal Article
Date: 2009 Feb
Journal: J Gen Intern Med 24(2):252-5
Topic(s): Decision-making;   Health Care Systems;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Patient-centered Communication;   Quality of Care;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Adult;   Attitude of Health Personnel;   Breast Neoplasms;   Communication;   Female;   Follow-Up Studies;   Helping Behavior;   Humans;   Longitudinal Studies;   Middle Aged;   Patient Satisfaction;   Perception;   Physician-Patient Relations;   psychology;   therapy;   Time Factors;   Trust
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Authors: Smith AW, Alfano CM, Reeve BB, Irwin ML, Bernstein L, Baumgartner K, Bowen D, McTiernan A, Ballard-Barbash R
Title: Race/ethnicity, physical activity, and quality of life in breast cancer survivors.
Type: Journal Article
Date: 2009 Feb
Journal: Cancer Epidemiol Biomarkers Prev 18(2):656-63
Topic(s): Health Behaviors & Survivorship;   Health Disparities;   Health-related Quality of Life;   Physical Activity;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   African Continental Ancestry Group;   Aged;   Aged, 80 and over;   Breast Neoplasms;   Chi-Square Distribution;   ethnology;   European Continental Ancestry Group;   Female;   Hispanic Americans;   Humans;   Middle Aged;   Motor Activity;   Prospective Studies;   psychology;   Quality of Life;   Regression Analysis;   statistics & numerical data;   Survivors
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Authors: Dougall AL, Smith AW, Somers TJ, Posluszny DM, Rubinstein WS, Baum A
Title: Coping with genetic testing for breast cancer susceptibility.
Type: Journal Article
Date: 2009 Jan
Journal: Psychosom Med 71(1):98-105
Topic(s): Cancer Risk Assessment & Prediction;   Decision-making;   Genetics & Molecular Markers;   Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Patient-centered Communication;   Risk Factors
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;   Adult;   Breast Neoplasms;   DNA Mutational Analysis;   etiology;   Female;   Follow-Up Studies;   Genes, BRCA1;   Genes, BRCA2;   Genetic Predisposition to Disease;   Genetic Testing;   genetics;   Humans;   Middle Aged;   psychology;   Psychotropic Drugs;   Risk;   Severity of Illness Index;   Stress, Psychological;   therapeutic use
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Authors: Meeske KA, Sullivan-Halley J, Smith AW, McTiernan A, Baumgartner KB, Harlan LC, Bernstein L
Title: Risk factors for arm lymphedema following breast cancer diagnosis in Black women and White women.
Type: Journal Article
Date: 2009 Jan
Journal: Breast Cancer Res Treat 113(2):383-91
Topic(s): Epidemiologic, Experimental, & Methodological Studies;   Epidemiology Studies & Related Methods;   Health-related Quality of Life;   Monitoring Risk Factors;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   adverse effects;   African Americans;   Age Factors;   Antineoplastic Agents;   Arm;   Breast Neoplasms;   Cohort Studies;   Combined Modality Therapy;   Comorbidity;   complications;   Contraceptives, Oral;   epidemiology;   ethnology;   etiology;   European Continental Ancestry Group;   Female;   Follow-Up Studies;   Humans;   Hypertension;   Infection;   Lymph Node Excision;   Lymphedema;   Middle Aged;   Obesity;   Radiotherapy;   Risk Factors;   statistics & numerical data;   therapeutic use;   therapy
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Authors: Guenther PM, Reedy J, Krebs-Smith SM, Reeve BB
Title: Evaluation of the Healthy Eating Index-2005.
Type: Journal Article
Date: 2008 Nov
Journal: J Am Diet Assoc 108(11):1854-64
Topic(s): Methods for Assessing Risk Factors;   Diet;   Monitoring Risk Factors;   Research Methodology;   Risk Factors
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   Aged;   Child;   Child, Preschool;   classification;   Diet;   Diet Surveys;   Eating;   Female;   Food;   Guidelines as Topic;   Health Food;   Humans;   Male;   Middle Aged;   Nutrition Assessment;   Nutrition Policy;   Nutritive Value;   Principal Component Analysis;   Questionnaires;   Reproducibility of Results;   Sensitivity and Specificity;   Smoking;   standards;   United States;   United States Department of Agriculture;   Young Adult
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Authors: Hammond CT, Beckjord EB, Arora NK, Bellizzi KM, Jeffery DD, Aziz NM
Title: Non-Hodgkin's lymphoma survivors' fertility and sexual function-related information needs.
Type: Journal Article
Date: 2008 Oct
Journal: Fertil Steril 90(4):1256-8
Topic(s): Health Care Systems;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study;   Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;   Adult;   Attitude to Health;   Cohort Studies;   Comorbidity;   epidemiology;   Female;   Health Knowledge, Attitudes, Practice;   Humans;   Infertility;   Los Angeles;   Male;   methods;   Middle Aged;   Patient Education as Topic;   Prevalence;   Questionnaires;   Registries;   Risk Assessment;   Risk Factors;   Sexual Dysfunction, Physiological;   Sexual Dysfunctions, Psychological;   statistics & numerical data;   Survivors
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Authors: Smith ER, Adams SA, Das IP, Bottai M, Fulton J, Hebert JR
Title: Breast cancer survival among economically disadvantaged women: the influences of delayed diagnosis and treatment on mortality.
Type: Journal Article
Date: 2008 Oct
Journal: Cancer Epidemiol Biomarkers Prev 17(10):2882-90
Topic(s): Economics of Cancer;   Health Disparities;   Outcomes (All);   Clinical Outcomes;   Screening;   Treatment
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: African Americans;   Breast Neoplasms;   Chi-Square Distribution;   epidemiology;   European Continental Ancestry Group;   Female;   Health Services Accessibility;   Humans;   Middle Aged;   mortality;   Proportional Hazards Models;   Registries;   Socioeconomic Factors;   South Carolina;   statistics & numerical data;   Statistics, Nonparametric;   Survival Analysis;   Time Factors
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Authors: Hsiao AF, Wong MD, Miller MF, Ambs AH, Goldstein MS, Smith A, Ballard-Barbash R, Becerra LS, Cheng EM, Wenger NS
Title: Role of religiosity and spirituality in complementary and alternative medicine use among cancer survivors in California.
Type: Journal Article
Date: 2008 Sep
Journal: Integr Cancer Ther 7(3):139-46
Topic(s): Health Behaviors & Survivorship;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): CHIS - Complementary & Alternative Medicine Survey (CHIS-CAM)
Keywords: Adult;   Aged;   California;   Complementary Therapies;   Cross-Sectional Studies;   epidemiology;   Female;   Health Surveys;   Humans;   Logistic Models;   Male;   Middle Aged;   Multivariate Analysis;   Neoplasms;   psychology;   Religion and Medicine;   Spirituality;   Survivors;   therapy;   utilization;   Young Adult
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Authors: Smith AW, Dougall AL, Posluszny DM, Somers TJ, Rubinstein WS, Baum A
Title: Psychological distress and quality of life associated with genetic testing for breast cancer risk.
Type: Journal Article
Date: 2008 Aug
Journal: Psychooncology 17(8):767-73
Topic(s): Decision-making;   Genetics & Molecular Markers;   Health-related Quality of Life;   Cancer Risk Assessment & Prediction
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: Adult;   Aged;   Breast Neoplasms;   Female;   Follow-Up Studies;   Genes, BRCA1;   Genes, BRCA2;   Genetic Testing;   genetics;   Humans;   Middle Aged;   Point Mutation;   psychology;   Quality of Life;   Questionnaires;   Risk Assessment;   Risk Factors;   Young Adult
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Authors: Hesse BW, Arora NK, Burke Beckjord E, Finney Rutten LJ
Title: Information support for cancer survivors.
Type: Journal Article
Date: 2008 Jun 01
Journal: Cancer 112(11 Suppl):2529-40
Topic(s): Information Seeking;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;   Adult;   Aged;   Aged, 80 and over;   Consumer Health Information;   Cross-Sectional Studies;   Female;   Health Surveys;   Humans;   Interviews as Topic;   Male;   Middle Aged;   Neoplasms;   Patient Acceptance of Health Care;   Patient Satisfaction;   psychology;   statistics & numerical data;   Survivors
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Authors: Keating NL, Landrum MB, Klabunde CN, Fletcher RH, Rogers SO, Doucette WR, Tisnado D, Clauser S, Kahn KL
Title: Adjuvant chemotherapy for stage III colon cancer: do physicians agree about the importance of patient age and comorbidity?
Type: Journal Article
Date: 2008 May 20
Journal: J Clin Oncol 26(15):2532-7
Topic(s): Treatment
Tumor Site(s): Colorectal
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS)
Keywords: Adult;   Age Factors;   Aged;   Aged, 80 and over;   Antineoplastic Agents;   Chemotherapy, Adjuvant;   Colonic Neoplasms;   Comorbidity;   Decision Making;   drug therapy;   epidemiology;   Female;   Humans;   Lung Neoplasms;   Male;   Middle Aged;   Neoplasm Staging;   Physicians;   psychology;   therapeutic use
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Authors: Arora NK
Title: Advancing research on patient-centered cancer communication.
Type: Journal Article
Date: 2008 Mar
Journal: Patient Educ Couns 70(3):301-2
Topic(s): Outcomes Research Measures & Methods;   Patient-centered Communication
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;   Health Services Needs and Demand;   Humans;   Neoplasms;   organization & administration;   Patient-Centered Care;   Professional-Patient Relations;   psychology;   Research
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Authors: Arora NK, Hesse BW, Rimer BK, Viswanath K, Clayman ML, Croyle RT
Title: Frustrated and confused: the American public rates its cancer-related information-seeking experiences.
Type: Journal Article
Date: 2008 Mar
Journal: J Gen Intern Med 23(3):223-8
Topic(s): Decision-making;   Information Seeking;   Prevention
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;   Adult;   Aged;   Confusion;   Cross-Sectional Studies;   Female;   Frustration;   Health Knowledge, Attitudes, Practice;   Humans;   Information Services;   Logistic Models;   Male;   Medical Informatics;   Middle Aged;   Neoplasms;   Odds Ratio;   Patient Education as Topic;   Patient Satisfaction;   Probability;   Questionnaires;   statistics & numerical data;   United States;   utilization
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Authors: Aiello Bowles EJ, Tuzzio L, Wiese CJ, Kirlin B, Greene SM, Clauser SB, Wagner EH
Title: Understanding high-quality cancer care: a summary of expert perspectives.
Type: Journal Article
Date: 2008 Feb 15
Journal: Cancer 112(4):934-42
Topic(s): Guidance & Policy Research;   Health Care Systems;   Patient-centered Communication;   Policy;   Quality of Care;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Research Network (CRN)
Keywords: Expert Testimony;   Humans;   Institute of Medicine (U.S.);   Interviews as Topic;   Neoplasms;   Quality of Health Care;   standards;   therapy;   United States
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Authors: Ambs A, Warren JL, Bellizzi KM, Topor M, Haffer SC, Clauser SB
Title: Overview of the SEER--Medicare Health Outcomes Survey linked dataset.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):5-21
Topic(s): Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Surveillance
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;   Aged, 80 and over;   classification;   Cohort Studies;   Comorbidity;   Cooperative Behavior;   Database Management Systems;   epidemiology;   Female;   Humans;   Male;   Managed Care Programs;   Medical Record Linkage;   Medicare;   Neoplasms;   Outcome Assessment (Health Care);   Program Evaluation;   psychology;   Quality of Life;   SEER Program;   Sickness Impact Profile;   standards;   statistics & numerical data;   Survivors;   United States
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Authors: Clauser SB, Arora NK, Bellizzi KM, Haffer SC, Topor M, Hays RD
Title: Disparities in HRQOL of cancer survivors and non-cancer managed care enrollees.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):23-40
Topic(s): Health Disparities;   Health-related Quality of Life;   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;   Aged, 80 and over;   classification;   Demography;   diagnosis;   epidemiology;   Female;   Healthcare Disparities;   Humans;   Male;   Managed Care Programs;   Medicare;   Mental Health;   Multivariate Analysis;   Neoplasms;   Outcome Assessment (Health Care);   psychology;   Quality of Life;   SEER Program;   Sickness Impact Profile;   Socioeconomic Factors;   standards;   statistics & numerical data;   Survivors;   United States
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Authors: Clauser SB, Haffer SC
Title: SEER-MHOS: a new federal collaboration on cancer outcomes research.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):1-4
Topic(s): none
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;   Cooperative Behavior;   epidemiology;   Humans;   Managed Care Programs;   Medicare;   Neoplasms;   Outcome Assessment (Health Care);   Quality of Life;   SEER Program;   standards;   Survivors;   United States
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Authors: Hays RD, Smith AW, Reeve BB, Spritzer KL, Marcus SE, Clauser SB
Title: Cigarette smoking and health-related quality of life in Medicare beneficiaries.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):57-67
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Tobacco
Tumor Site(s): Head and Neck;   Lung
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: adverse effects;   Aged;   Aged, 80 and over;   Chronic Disease;   classification;   Cohort Studies;   Database Management Systems;   Demography;   epidemiology;   etiology;   Female;   Humans;   Least-Squares Analysis;   Male;   Managed Care Programs;   Medical Record Linkage;   Medicare;   Neoplasms;   Outcome Assessment (Health Care);   Quality of Life;   SEER Program;   Sickness Impact Profile;   Smoking;   Socioeconomic Factors;   standards;   statistics & numerical data;   Survivors;   United States
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Authors: Reeve BB, Smith AW, Arora NK, Hays RD
Title: Reducing bias in cancer research: application of propensity score matching.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):69-80
Topic(s): Outcomes Research Measures & Methods;   Research Methodology
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;   Aged, 80 and over;   Chronic Disease;   Cohort Studies;   Comorbidity;   Cost of Illness;   Database Management Systems;   Epidemiologic Research Design;   epidemiology;   Female;   Humans;   Male;   Managed Care Programs;   Medicare;   methods;   Neoplasms;   Observation;   Outcome Assessment (Health Care);   Quality of Life;   SEER Program;   Socioeconomic Factors;   standards;   statistics & numerical data;   Survivors;   United States
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Authors: Smith AW, Reeve BB, Bellizzi KM, Harlan LC, Klabunde CN, Amsellem M, Bierman AS, Hays RD
Title: Cancer, comorbidities, and health-related quality of life of older adults.
Type: Journal Article
Date: 2008 Summer
Journal: Health Care Financ Rev 29(4):41-56
Topic(s): Health-related Quality of Life;   Outcomes Research Measures & Methods;   Outcomes (All);   Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): SEER-Medicare Health Outcomes Survey (SEER-MHOS)
Keywords: Aged;   Aged, 80 and over;   classification;   Comorbidity;   Demography;   diagnosis;   epidemiology;   Female;   Humans;   Male;   Managed Care Programs;   Medical Record Linkage;   Medicare;   Neoplasms;   Outcome Assessment (Health Care);   Poisson Distribution;   Prevalence;   Quality of Life;   SEER Program;   Sickness Impact Profile;   standards;   statistics & numerical data;   Survivors;   United States
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Authors: National Cancer Institute
Title: Cancer Trends Progress Report - 2007 Update
Type: Report
Date: 2007 Dec
Report:
Topic(s): Monitoring Risk Factors;   Tobacco
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Tobacco Use Supplement to the Current Population Survey (TUS-CPS)
Keywords: none
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Authors: Garcia SF, Cella D, Clauser SB, Flynn KE, Lad T, Lai JS, Reeve BB, Smith AW, Stone AA, Weinfurt K
Title: Standardizing patient-reported outcomes assessment in cancer clinical trials: a patient-reported outcomes measurement information system initiative.
Type: Journal Article
Date: 2007 Nov 10
Journal: J Clin Oncol 25(32):5106-12
Topic(s): Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life;   Outcomes Research Measures & Methods;   Research Methodology
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-Reported Outcomes Measurement Information System (PROMIS)
Keywords: Clinical Trials as Topic;   Continuity of Patient Care;   Humans;   instrumentation;   Neoplasms;   Patient Satisfaction;   Psychometrics;   Quality Indicators, Health Care;   Quality of Life;   Reproducibility of Results;   Sickness Impact Profile;   standards;   therapy;   Treatment Outcome
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Authors: Lipscomb J, Reeve BB, Clauser SB, Abrams JS, Bruner DW, Burke LB, Denicoff AM, Ganz PA, Gondek K, Minasian LM, O'Mara AM, Revicki DA, Rock EP, Rowland JH, Sgambati M, Trimble EL
Title: Patient-reported outcomes assessment in cancer trials: taking stock, moving forward.
Type: Journal Article
Date: 2007 Nov 10
Journal: J Clin Oncol 25(32):5133-40
Topic(s): Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Clinical Trials as Topic;   Decision Making;   Humans;   Neoplasms;   Patient Satisfaction;   Quality Indicators, Health Care;   Quality of Life;   Sickness Impact Profile;   therapy;   Treatment Outcome;   trends
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Authors: Minasian LM, O'Mara AM, Reeve BB, Denicoff AM, Kelaghan J, Rowland JH, Trimble EL, National Cancer Institute
Title: Health-related quality of life and symptom management research sponsored by the National Cancer Institute.
Type: Journal Article
Date: 2007 Nov 10
Journal: J Clin Oncol 25(32):5128-32
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Clinical Trials as Topic;   Humans;   methods;   National Cancer Institute (U.S.);   Neoplasms;   Patient Satisfaction;   Professional Staff Committees;   Quality Indicators, Health Care;   Quality of Life;   Sickness Impact Profile;   standards;   therapy;   Treatment Outcome;   United States
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Authors: Bowen DJ, Alfano CM, McGregor BA, Kuniyuki A, Bernstein L, Meeske K, Baumgartner KB, Fetherolf J, Reeve BB, Smith AW, Ganz PA, McTiernan A, Barbash RB
Title: Possible socioeconomic and ethnic disparities in quality of life in a cohort of breast cancer survivors.
Type: Journal Article
Date: 2007 Nov
Journal: Breast Cancer Res Treat 106(1):85-95
Topic(s): Economics of Cancer;   Health Behaviors & Survivorship;   Health Disparities;   Health-related Quality of Life;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   African Americans;   Aged;   Breast Neoplasms;   Disability Evaluation;   Employment;   epidemiology;   ethnology;   European Continental Ancestry Group;   Female;   Health Status Disparities;   Hispanic Americans;   Humans;   Mental Health;   Middle Aged;   physiopathology;   Population Surveillance;   Prospective Studies;   psychology;   Quality of Life;   Questionnaires;   Recovery of Function;   Socioeconomic Factors;   statistics & numerical data;   Survivors;   therapy;   Time Factors;   Treatment Outcome;   United States
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Authors: Frost MH, Reeve BB, Liepa AM, Stauffer JW, Hays RD, Mayo/FDA Patient-Reported Outcomes Consensus Meeting Group;
Title: What is sufficient evidence for the reliability and validity of patient-reported outcome measures?
Type: Journal Article
Date: 2007 Nov-Dec
Journal: Value Health 10 Suppl 2():S94-S105
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes;   Research Methodology
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Clinical Trials as Topic;   Data Interpretation, Statistical;   Humans;   Patient Satisfaction;   Product Labeling;   Psychometrics;   Qualitative Research;   Reproducibility of Results;   Research Design;   standards;   statistics & numerical data;   Treatment Outcome;   United States;   Validation Studies as Topic
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Authors: Bellizzi KM, Miller MF, Arora NK, Rowland JH
Title: Positive and negative life changes experienced by survivors of non-Hodgkin's lymphoma.
Type: Journal Article
Date: 2007 Oct
Journal: Ann Behav Med 34(2):188-99
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Activities of Daily Living;   Adaptation, Psychological;   Adult;   Aged;   Aged, 80 and over;   Family Relations;   Female;   Health Behavior;   Humans;   Life Change Events;   Lymphoma, Non-Hodgkin;   Male;   Middle Aged;   psychology;   Quality of Life;   Sick Role;   Socioeconomic Factors;   Survivors
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Authors: Nelson WL, Han PK, Fagerlin A, Stefanek M, Ubel PA
Title: Rethinking the objectives of decision aids: a call for conceptual clarity.
Type: Journal Article
Date: 2007 Sep-Oct
Journal: Med Decis Making 27(5):609-18
Topic(s): Decision-making
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Concept Formation;   Decision Making;   Decision Support Techniques;   Dissent and Disputes;   Humans;   Patient Participation;   Physician-Patient Relations;   United States
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Authors: Politi MC, Han PK, Col NF
Title: Communicating the uncertainty of harms and benefits of medical interventions.
Type: Journal Article
Date: 2007 Sep-Oct
Journal: Med Decis Making 27(5):681-95
Topic(s): Decision-making
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;   Bibliometrics;   Communication;   Decision Making;   Humans;   Outcome and Process Assessment (Health Care);   Patient Care;   Patient Participation;   Physician-Patient Relations;   Risk Assessment;   Uncertainty;   United States
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Authors: Meeske K, Smith AW, Alfano CM, McGregor BA, McTiernan A, Baumgartner KB, Malone KE, Reeve BB, Ballard-Barbash R, Bernstein L
Title: Fatigue in breast cancer survivors two to five years post diagnosis: a HEAL Study report.
Type: Journal Article
Date: 2007 Aug
Journal: Qual Life Res 16(6):947-60
Topic(s): Health Behaviors & Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   Aged;   Aged, 80 and over;   Breast Neoplasms;   classification;   epidemiology;   etiology;   Fatigue;   Female;   Humans;   Logistic Models;   Los Angeles;   Middle Aged;   Multivariate Analysis;   New Mexico;   physiopathology;   Prevalence;   Prospective Studies;   psychology;   Psychometrics;   Quality of Life;   SEER Program;   Severity of Illness Index;   Sickness Impact Profile;   statistics & numerical data;   Survivors;   Washington
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Authors: Alfano CM, Smith AW, Irwin ML, Bowen DJ, Sorensen B, Reeve BB, Meeske KA, Bernstein L, Baumgartner KB, Ballard-Barbash R, Malone KE, McTiernan A
Title: Physical activity, long-term symptoms, and physical health-related quality of life among breast cancer survivors: a prospective analysis.
Type: Journal Article
Date: 2007 Jun
Journal: J Cancer Surviv 1(2):116-28
Topic(s): Health Behaviors & Survivorship;   Health-related Quality of Life;   Monitoring Risk Factors;   Outcomes (All);   Patient-reported Outcomes;   Physical Activity;   Survivorship
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Activities of Daily Living;   Adaptation, Psychological;   Adult;   Aged;   Aged, 80 and over;   Breast Neoplasms;   California;   Cohort Studies;   complications;   Exercise;   Fatigue;   Female;   Health Status;   Humans;   Middle Aged;   New Mexico;   Pain;   physiopathology;   Prospective Studies;   psychology;   Quality of Life;   Registries;   Regression Analysis;   rehabilitation;   statistics & numerical data;   Survivors;   United States;   Washington
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Authors: Arora NK, Finney Rutten LJ, Gustafson DH, Moser R, Hawkins RP
Title: Perceived helpfulness and impact of social support provided by family, friends, and health care providers to women newly diagnosed with breast cancer.
Type: Journal Article
Date: 2007 May
Journal: Psychooncology 16(5):474-86
Topic(s): Health-related Quality of Life
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Adaptation, Psychological;   Adult;   Breast Neoplasms;   Decision Making;   diagnosis;   Family;   Female;   Friends;   Humans;   Longitudinal Studies;   Middle Aged;   Patient Education as Topic;   Patient Satisfaction;   Physician's Role;   psychology;   Quality of Life;   Questionnaires;   Self Efficacy;   Self-Help Groups;   Sick Role;   Social Support
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Authors: Cella D, Yount S, Rothrock N, Gershon R, Cook K, Reeve B, Ader D, Fries JF, Bruce B, Rose M, PROMIS Cooperative Group
Title: The Patient-Reported Outcomes Measurement Information System (PROMIS): progress of an NIH Roadmap cooperative group during its first two years.
Type: Journal Article
Date: 2007 May
Journal: Med Care 45(5 Suppl 1):S3-S11
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cooperative Behavior;   Databases as Topic;   Information Systems;   National Institutes of Health (U.S.);   Outcome Assessment (Health Care);   Quality of Life;   Self Disclosure;   United States
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Authors: Reeve BB, Hays RD, Bjorner JB, Cook KF, Crane PK, Teresi JA, Thissen D, Revicki DA, Weiss DJ, Hambleton RK, Liu H, Gershon R, Reise SP, Lai JS, Cella D, PROMIS Cooperative Group
Title: Psychometric evaluation and calibration of health-related quality of life item banks: plans for the Patient-Reported Outcomes Measurement Information System (PROMIS).
Type: Journal Article
Date: 2007 May
Journal: Med Care 45(5 Suppl 1):S22-31
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   Aged;   Calibration;   Databases as Topic;   Evaluation Studies as Topic;   Female;   Health Status;   Humans;   Information Systems;   Male;   methods;   Middle Aged;   Outcome Assessment (Health Care);   Psychometrics;   Quality of Life;   Questionnaires;   Self Disclosure;   standards;   United States
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Authors: Arora NK, Hamilton AS, Potosky AL, Rowland JH, Aziz NM, Bellizzi KM, Klabunde CN, McLaughlin W, Stevens J
Title: Population-based survivorship research using cancer registries: a study of non-Hodgkin's lymphoma survivors.
Type: Journal Article
Date: 2007 Mar
Journal: J Cancer Surviv 1(1):49-63
Topic(s): Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship
Tumor Site(s): Lymphoma
Data Source/Project/Initiative(s): Experience of Care & Health Outcomes of Survivors of Non-Hodgkin's Lymphoma (ECHOS-NHL) Study
Keywords: Adult;   Aged;   complications;   diagnosis;   Female;   Health Status;   Health Surveys;   Humans;   Los Angeles;   Lymphoma, Non-Hodgkin;   Male;   Middle Aged;   psychology;   Quality of Life;   Questionnaires;   Registries;   Research Design;   statistics & numerical data;   Survivors;   Treatment Outcome
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Authors: Han PK, Kobrin SC, Klein WM, Davis WW, Stefanek M, Taplin SH
Title: Perceived ambiguity about screening mammography recommendations: association with future mammography uptake and perceptions.
Type: Journal Article
Date: 2007 Mar
Journal: Cancer Epidemiol Biomarkers Prev 16(3):458-66
Topic(s): Preventive & Screening Services;   Decision-making
Tumor Site(s): Breast
Data Source/Project/Initiative(s): none
Keywords: Aged;   Attitude to Health;   Chi-Square Distribution;   Female;   Humans;   Logistic Models;   Longitudinal Studies;   Mammography;   Middle Aged;   Patient Compliance;   Prospective Studies;   psychology;   Randomized Controlled Trials as Topic;   Reminder Systems;   Uncertainty;   utilization
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Authors: Bjorner JB, Chang CH, Thissen D, Reeve BB
Title: Developing tailored instruments: item banking and computerized adaptive assessment.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():95-108
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Algorithms;   Factor Analysis, Statistical;   Health Status;   Health Status Indicators;   Humans;   Mental Health;   Models, Statistical;   Outcome Assessment (Health Care);   Psychometrics;   Quality of Life;   Questionnaires;   Software
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Authors: Cook KF, Teal CR, Bjorner JB, Cella D, Chang CH, Crane PK, Gibbons LE, Hays RD, McHorney CA, Ocepek-Welikson K, Raczek AE, Teresi JA, Reeve BB
Title: IRT health outcomes data analysis project: an overview and summary.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():121-32
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Data Interpretation, Statistical;   Female;   Health Status;   HIV Infections;   Humans;   Male;   methods;   Neoplasms;   Outcome Assessment (Health Care);   psychology;   Psychometrics;   Quality of Life;   Questionnaires;   Software;   Stress, Psychological
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Authors: Edelen MO, Reeve BB
Title: Applying item response theory (IRT) modeling to questionnaire development, evaluation, and refinement.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():5-18
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Depression;   diagnosis;   Health Surveys;   Humans;   Interviews as Topic;   methods;   Models, Theoretical;   Outcome Assessment (Health Care);   Quality of Life;   Questionnaires;   Reproducibility of Results;   Research
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Authors: Epstein RM, Street RLJr
Title: Patient-Centered Communication in Cancer Care: Promoting Healing and Reducing Suffering
Type: Report
Date: 2007
Report: NIH Publication No. 07-6225
Topic(s): Decision-making;   Diet;   Health Behaviors & Survivorship;   Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Patient-centered Communication;   Physical Activity;   Preventive & Screening Services;   Prevention;   Screening;   Surveillance;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Reeve BB, Burke LB, Chiang YP, Clauser SB, Colpe LJ, Elias JW, Fleishman J, Hohmann AA, Johnson-Taylor WL, Lawrence W, Moy CS, Quatrano LA, Riley WT, Smothers BA, Werner EM
Title: Enhancing measurement in health outcomes research supported by Agencies within the US Department of Health and Human Services.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():175-86
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Biomedical Research;   Computer Systems;   Decision Making;   Health Policy;   Health Status;   Humans;   methods;   National Institutes of Health (U.S.);   Outcome Assessment (Health Care);   Psychometrics;   Quality of Life;   Questionnaires;   Software;   standards;   United States;   United States Dept. of Health and Human Services;   United States Food and Drug Administration
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Authors: Reeve BB, Hays RD, Chang CH, Perfetto EM
Title: Applying item response theory to enhance health outcomes assessment
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():1-3
Topic(s): Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Thissen D, Reeve BB, Bjorner JB, Chang CH
Title: Methodological issues for building item banks and computerized adaptive scales.
Type: Journal Article
Date: 2007
Journal: Qual Life Res 16 Suppl 1():109-19
Topic(s): Outcomes Research Measures & Methods;   Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Educational Measurement;   Health Status;   Humans;   methods;   Outcome Assessment (Health Care);   Questionnaires;   Software
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Authors: Alfano CM, McGregor BA, Kuniyuki A, Reeve BB, Bowen DJ, Baumgartner KB, Bernstein L, Ballard-Barbash R, Malone KE, Ganz PA, McTiernan A
Title: Psychometric properties of a tool for measuring hormone-related symptoms in breast cancer survivors.
Type: Journal Article
Date: 2006 Nov
Journal: Psychooncology 15(11):985-1000
Topic(s): Health Behaviors & Survivorship;   Cognitive Methods in Survey Research;   Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   adverse effects;   Aged;   Antineoplastic Agents, Hormonal;   Breast Neoplasms;   Carcinoma in Situ;   Climacteric;   Combined Modality Therapy;   deficiency;   drug effects;   Estrogens;   Female;   Humans;   Middle Aged;   Prospective Studies;   psychology;   Psychometrics;   Quality of Life;   Reproducibility of Results;   Sickness Impact Profile;   statistics & numerical data;   Survivors;   Tamoxifen;   therapeutic use;   therapy
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Authors: Reeve BB
Title: Special issues for building computerized-adaptive tests for measuring patient-reported outcomes: the National Institute of Health's investment in new technology.
Type: Journal Article
Date: 2006 Nov
Journal: Med Care 44(11 Suppl 3):S198-204
Topic(s): Health-related Quality of Life
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Databases as Topic;   Health Status;   Humans;   National Institutes of Health (U.S.);   Outcome Assessment (Health Care);   Quality of Life;   Questionnaires;   statistics & numerical data;   United States
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Authors: Reeve BB, Potosky AL, Willis GB
Title: Should function and bother be measured and reported separately for prostate cancer quality-of-life domains?
Type: Journal Article
Date: 2006 Sep
Journal: Urology 68(3):599-603
Topic(s): Cognitive Methods in Survey Research;   Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): Prostate Cancer Outcomes Study (PCOS)
Keywords: complications;   diagnosis;   Humans;   Male;   physiopathology;   Prostatic Neoplasms;   Quality of Life
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Authors: Malin JL, Ko C, Ayanian JZ, Harrington D, Nerenz DR, Kahn KL, Ganther-Urmie J, Catalano PJ, Zaslavsky AM, Wallace RB, Guadagnoli E, Arora NK, Roudier MD, Ganz PA
Title: Understanding cancer patients' experience and outcomes: development and pilot study of the Cancer Care Outcomes Research and Surveillance patient survey.
Type: Journal Article
Date: 2006 Aug
Journal: Support Care Cancer 14(8):837-48
Topic(s): Decision-making;   Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Palliative & End-of-life Care;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Care Outcomes Research & Surveillance Consortium (CanCORS);   Cancer Research Network (CRN)
Keywords: Aged;   Cohort Studies;   Colorectal Neoplasms;   Comprehension;   Decision Making;   Feasibility Studies;   Female;   Health Services Research;   Health Status;   Health Surveys;   Humans;   Interviews as Topic;   Lung Neoplasms;   Male;   methods;   Middle Aged;   Pilot Projects;   psychology;   Quality of Life;   Questionnaires;   Research Design;   Retrospective Studies;   standards;   therapy;   Treatment Outcome;   United States
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Authors: Han PK, Coates RJ, Uhler RJ, Breen N
Title: Decision making in prostate-specific antigen screening National Health Interview Survey, 2000.
Type: Journal Article
Date: 2006 May
Journal: Am J Prev Med 30(5):394-404
Topic(s): Decision-making;   Preventive & Screening Services;   Screening
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): National Health Interview Survey (NHIS) - Cancer Control Supplement (CCS)
Keywords: Adult;   blood;   Cross-Sectional Studies;   Decision Making;   Humans;   Interviews as Topic;   Male;   Mass Screening;   methods;   Middle Aged;   National Center for Health Statistics (U.S.);   Physician-Patient Relations;   Prostate-Specific Antigen;   Socioeconomic Factors;   statistics & numerical data;   United States
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Authors: Arnold RM, Han PK, Seltzer D
Title: Opioid contracts in chronic nonmalignant pain management: objectives and uncertainties.
Type: Journal Article
Date: 2006 Apr
Journal: Am J Med 119(4):292-6
Topic(s): Palliative & End-of-life Care;   Patient-centered Communication
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: administration & dosage;   adverse effects;   Analgesics, Opioid;   Chronic Disease;   drug therapy;   etiology;   Humans;   Informed Consent;   legislation & jurisprudence;   Opioid-Related Disorders;   Pain;   Patient Compliance;   Physician's Practice Patterns;   Physician-Patient Relations;   prevention & control;   Stereotyping;   Trust;   United States
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Authors: Pavletic SZ, Martin P, Lee SJ, Mitchell S, Jacobsohn D, Cowen EW, Turner ML, Akpek G, Gilman A, McDonald G, Schubert M, Berger A, Bross P, Chien JW, Couriel D, Dunn JP, Fall-Dickson J, Farrell A, Flowers ME, Greinix H, Hirschfeld S, Gerber L, Kim S, Knobler R, Lachenbruch PA, Miller FW, Mittleman B, Papadopoulos E, Parsons SK, Przepiorka D, Robinson M, Ward M, Reeve B, Rider LG, Shulman H, Schultz KR, Weisdorf D, Vogelsang GB, Response Criteria Working Group
Title: Measuring therapeutic response in chronic graft-versus-host disease: National Institutes of Health Consensus Development Project on Criteria for Clinical Trials in Chronic Graft-versus-Host Disease: IV. Response Criteria Working Group report.
Type: Journal Article
Date: 2006 Mar
Journal: Biol Blood Marrow Transplant 12(3):252-66
Topic(s): Health-related Quality of Life
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   Child;   Child, Preschool;   Chronic Disease;   Clinical Trials as Topic;   Consensus Development Conferences, NIH as Topic;   Female;   Graft vs Host Disease;   Humans;   Male;   Medical Records;   pathology;   Severity of Illness Index;   standards;   therapy;   Time Factors;   Treatment Outcome;   United States
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Authors: Shaw BR, Hawkins R, Arora N, McTavish F, Pingree S, Gustafson DH
Title: An exploratory study of predictors of participation in a computer support group for women with breast cancer.
Type: Journal Article
Date: 2006 Jan-Feb
Journal: Comput Inform Nurs 24(1):18-27
Topic(s): Survivorship;   Information Seeking
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;   Adult;   Attitude to Computers;   Breast Neoplasms;   Chi-Square Distribution;   Computer Literacy;   Computer User Training;   education;   Educational Status;   Female;   Health Knowledge, Attitudes, Practice;   Health Services Needs and Demand;   Health Status;   Humans;   Illinois;   Indiana;   Internet;   Nursing Methodology Research;   Patient Participation;   psychology;   Questionnaires;   Regression Analysis;   Self Efficacy;   Self-Help Groups;   Social Support;   utilization;   Wisconsin;   Women
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Authors: Alfano CM, McGregor BA, Kuniyuki A, Reeve BB, Bowen DJ, Wilder Smith A, Baumgartner KB, Bernstein L, Ballard-Barbash R, Malone KE, Ganz PA, McTiernan A
Title: Psychometric evaluation of the Brief Cancer Impact Assessment among breast cancer survivors.
Type: Journal Article
Date: 2006
Journal: Oncology 70(3):190-202
Topic(s): Health Behaviors & Survivorship;   Cognitive Methods in Survey Research;   Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life
Tumor Site(s): Breast
Data Source/Project/Initiative(s): Health, Eating, Activity, and Lifestyle Study (HEAL)
Keywords: Adult;   Aged;   Breast Neoplasms;   etiology;   Factor Analysis, Statistical;   Fear;   Female;   Health Status;   Humans;   Middle Aged;   psychology;   Psychometrics;   Quality of Life;   Questionnaires;   Recurrence;   Reproducibility of Results;   Role;   statistics & numerical data;   Stress, Psychological;   Survivors;   therapy
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Authors: Finney Rutten LJ, Arora NK
Title: Importance of physicians' communication behavior across the cancer continuum
Type: Book Chapter
Date: 2006
Book Editors: O'Hair Dan, Kreps Gary L, Sparks Lisa Daniel
Book Title: Handbook of communication and cancer care
ISBN: 1572736828External Web Site Policy
Topic(s): Patient-centered Communication
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: none

Authors: Han PK, Moser RP, Klein WM
Title: Perceived ambiguity about cancer prevention recommendations: relationship to perceptions of cancer preventability, risk, and worry.
Type: Journal Article
Date: 2006
Journal: J Health Commun 11 Suppl 1():51-69
Topic(s): Preventive & Screening Services;   Decision-making
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adult;   Aged;   Anxiety;   Attitude to Health;   Female;   Health Surveys;   Humans;   Male;   Middle Aged;   Neoplasms;   prevention & control;   psychology;   Risk Assessment;   Social Perception;   Uncertainty;   United States
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Authors: Han Paul K, Arnold Robert M
Title: Physician Responsibility: The Authors' Response
Type: Journal Article
Date: 2006
Journal: Journal of palliative medicine 9(4):840-840
Topic(s): Patient-centered Communication;   Palliative & End-of-life Care
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Hesse BW, Nelson DE, Kreps GL, Croyle RT, Arora NK, Rimer BK, Viswanath K
Title: Trust and sources of health information: the impact of the Internet and its implications for health care providers: findings from the first Health Information National Trends Survey.
Type: Journal Article
Date: 2005 Dec 12-26
Journal: Arch Intern Med 165(22):2618-24
Topic(s): Patient-centered Communication;   Information Seeking
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Adolescent;   Adult;   Age Factors;   Aged;   Attitude to Computers;   Attitude to Health;   Continental Population Groups;   Educational Status;   Female;   Health Education;   Humans;   Internet;   Logistic Models;   Male;   methods;   Middle Aged;   Neoplasms;   Physician-Patient Relations;   Questionnaires;   Sex Factors;   Trust;   United States;   utilization
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Authors: Han PK, Arnold RM
Title: Palliative care services, patient abandonment, and the scope of physicians' responsibilities in end-of-life care.
Type: Journal Article
Date: 2005 Dec
Journal: J Palliat Med 8(6):1238-45
Topic(s): Patient-centered Communication;   Palliative & End-of-life Care
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Aged;   Humans;   Male;   Middle Aged;   organization & administration;   Palliative Care;   Pennsylvania;   Physician's Role;   Referral and Consultation;   Refusal to Treat;   standards;   Terminally Ill
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Authors: National Cancer Institute
Title: Cancer Trends Progress Report - 2005 Update
Type: Report
Date: 2005 Dec
Report:
Topic(s): Monitoring Risk Factors;   Tobacco
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Tobacco Use Supplement to the Current Population Survey (TUS-CPS)
Keywords: none
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Authors: Arora NK, Ayanian JZ, Guadagnoli E
Title: Examining the relationship of patients' attitudes and beliefs with their self-reported level of participation in medical decision-making.
Type: Journal Article
Date: 2005 Sep
Journal: Med Care 43(9):865-72
Topic(s): Patient-centered Communication;   Decision-making
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;   Attitude to Health;   Boston;   Decision Making;   Female;   Health Care Surveys;   Hospitals, Teaching;   Humans;   instrumentation;   Male;   Middle Aged;   Models, Theoretical;   Outpatient Clinics, Hospital;   Outpatients;   Patient Participation;   Physician-Patient Relations;   Primary Health Care;   psychology;   Psychometrics;   Questionnaires;   Self Efficacy;   statistics & numerical data;   Trust
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Authors: Chang CH, Reeve BB
Title: Item response theory and its applications to patient-reported outcomes measurement.
Type: Journal Article
Date: 2005 Sep
Journal: Eval Health Prof 28(3):264-82
Topic(s): Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Health Services Research;   Humans;   Mathematical Computing;   methods;   Models, Statistical;   Outcome Assessment (Health Care)
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Authors: Hamann HA, Somers TJ, Smith AW, Inslicht SS, Baum A
Title: Posttraumatic stress associated with cancer history and BRCA1/2 genetic testing.
Type: Journal Article
Date: 2005 Sep-Oct
Journal: Psychosom Med 67(5):766-72
Topic(s): Preventive & Screening Services;   Health-related Quality of Life
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;   Aged;   BRCA1 Protein;   BRCA2 Protein;   Breast Neoplasms;   Comorbidity;   diagnosis;   epidemiology;   etiology;   Family;   Female;   Genetic Predisposition to Disease;   Genetic Testing;   genetics;   Heterozygote;   Humans;   Middle Aged;   Psychiatric Status Rating Scales;   psychology;   Stress Disorders, Post-Traumatic
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Authors: Lai JS, Dineen K, Reeve BB, Von Roenn J, Shervin D, McGuire M, Bode RK, Paice J, Cella D
Title: An item response theory-based pain item bank can enhance measurement precision.
Type: Journal Article
Date: 2005 Sep
Journal: J Pain Symptom Manage 30(3):278-88
Topic(s): Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life;   Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;   Aged;   complications;   Data Interpretation, Statistical;   etiology;   Female;   Humans;   Male;   methods;   Middle Aged;   Neoplasms;   Pain Measurement;   Pain, Intractable;   Prostatic Neoplasms;   Psychometrics;   Socioeconomic Factors;   therapy
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Authors: Han PK, Keranen LB, Lescisin DA, Arnold RM
Title: The palliative care clinical evaluation exercise (CEX): an experience-based intervention for teaching end-of-life communication skills.
Type: Journal Article
Date: 2005 Jul
Journal: Acad Med 80(7):669-76
Topic(s): Patient-centered Communication;   Palliative & End-of-life Care
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;   Aged;   Attitude of Health Personnel;   Attitude to Death;   Clinical Competence;   education;   Educational Measurement;   Faculty, Medical;   Female;   Humans;   Internal Medicine;   Internship and Residency;   Male;   methods;   Palliative Care;   Physician-Patient Relations;   Pilot Projects;   Problem-Based Learning;   psychology;   Terminal Care;   Truth Disclosure
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Authors: Eton DT, Lai JS, Cella D, Reeve BB, Talcott JA, Clark JA, McPherson CP, Litwin MS, Moinpour CM
Title: Data pooling and analysis to build a preliminary item bank: an example using bowel function in prostate cancer.
Type: Journal Article
Date: 2005 Jun
Journal: Eval Health Prof 28(2):142-59
Topic(s): Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life;   Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adult;   Aged;   Data Collection;   Humans;   Intestine, Large;   Male;   methods;   Middle Aged;   physiopathology;   Prostatic Neoplasms;   Psychometrics;   Quality of Life;   Questionnaires;   Statistics, Nonparametric
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Authors: Rutten LJ, Arora NK, Bakos AD, Aziz N, Rowland J
Title: Information needs and sources of information among cancer patients: a systematic review of research (1980-2003).
Type: Journal Article
Date: 2005 Jun
Journal: Patient Educ Couns 57(3):250-61
Topic(s): Information Seeking
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;   Australia;   Canada;   Data Collection;   diagnosis;   Europe;   Great Britain;   Health Personnel;   Health Services Needs and Demand;   Hotlines;   Humans;   Information Services;   Internet;   Mass Media;   Neoplasms;   organization & administration;   Patient Education as Topic;   Prognosis;   psychology;   Recovery of Function;   Research Design;   Socioeconomic Factors;   Survivors;   therapy;   Treatment Outcome;   United States
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Authors: Smith AW, Baum A, Wing RR
Title: Stress and weight gain in parents of cancer patients.
Type: Journal Article
Date: 2005 Feb
Journal: Int J Obes (Lond) 29(2):244-50
Topic(s): Survivorship
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   Body Weight;   Case-Control Studies;   Child;   Child, Preschool;   Chronic Disease;   Diet;   Energy Intake;   Family Health;   Female;   Humans;   Infant;   Male;   Middle Aged;   Motor Activity;   Neoplasms;   Parents;   physiopathology;   psychology;   Stress, Psychological;   Weight Gain
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Authors: Reeve BB
Title: Item response theory
Type: Book Chapter
Date: 2005
Book Editors: Best Samuel J, Radcliff Benjamin
Book Title: Polling America: an encyclopedia of public opinion
ISBN: 0313327017External Web Site Policy
Topic(s): Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Smith AW, Chang S
Title: Commentary on Lahmann PH, Hoffmann K, Allen N, van Gils CH, Khaw KT, Tehard B, Berrino F, Tjonneland A, Bigaard J, Olsen A, Overvad K, Clavel-Chapelon F, Nagel G, Boeing H, Trichopoulos D, Economou G, Bellos G, Palli D, Tumino R, Panico S, Sacerdote C, Krogh V, Peeters PH, Bueno-de-Mesquita HB, Lund E, Ardanaz E, Amiano P, Pera G, Quiros JR, Martinez C, Tormo MJ, Wirfalt E, Berglund G, Hallmans G, Key TJ, Reeves G, Bingham S, Norat T, Biessy C, Kaaks R, Riboli E. Body size and breast cancer risk: findings from the European Prospective Investigation into Cancer And Nutrition (EPIC). Int J Cancer 2004 Sep 20;111(5):762-71.
Type: Journal Article
Date: 2005
Journal: Breast Dis Yearb Q 16():33-34
Topic(s): Preventive & Screening Services
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none

Authors: Willis GB, Reeve BB, Barofsky I
Title: The Use of Cognitive Interviewing Techniques in Quality of Life and Patient-Reported Outcomes Measurement
Type: Book Chapter
Date: 2005
Book Editors: Lipscomb Joseph, Gotay Carolyn C, Snyder Claire
Book Title: Outcomes assessment in cancer
ISBN:
Topic(s): Cognitive Methods in Survey Research;   Outcomes (All);   Patient-reported Outcomes;   Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Cancer Outcomes Measurement Working Group
Keywords: none

Authors: Gotay CC, Snyder C
Title: Outcomes Assessment in Cancer: Measures, Methods and Applications
Type: Book, Whole
Date: 2004 Dec
ISBN: 0521838908External Web Site Policy
Topic(s): Outcomes (All)
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Nelson DE, Kreps GL, Hesse BW, Croyle RT, Willis G, Arora NK, Rimer BK, Viswanath KV, Weinstein N, Alden S
Title: The Health Information National Trends Survey (HINTS): development, design, and dissemination.
Type: Journal Article
Date: 2004 Sep-Oct
Journal: J Health Commun 9(5):443-4
Topic(s): Cognitive Methods in Survey Research;   Information Seeking
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Health Information National Trends Survey (HINTS)
Keywords: Access to Information;   Adolescent;   Adult;   Humans;   Information Services;   National Institutes of Health (U.S.);   Neoplasms;   Questionnaires;   United States
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Authors: Clauser SB
Title: Use of cancer performance measures in population health: a macro-level perspective.
Type: Journal Article
Date: 2004
Journal: J Natl Cancer Inst Monogr 142-54
Topic(s): Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cost of Illness;   epidemiology;   Health Policy;   Humans;   Incidence;   mortality;   Neoplasms;   Outcome Assessment (Health Care);   Patient Satisfaction;   prevention & control;   Quality of Health Care;   Quality of Life;   Survival Rate;   therapy
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Authors: Lipscomb J, Donaldson MS, Arora NK, Brown ML, Clauser SB, Potosky AL, Reeve BB, Rowland JH, Snyder CF, Taplin SH
Title: Cancer outcomes research.
Type: Journal Article
Date: 2004
Journal: J Natl Cancer Inst Monogr 178-97
Topic(s): Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cost of Illness;   economics;   Health Care Costs;   Health Services Research;   Humans;   Neoplasms;   Outcome Assessment (Health Care);   Patient Satisfaction;   psychology;   Quality of Life;   therapy
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Authors: Reeve BB, Fayers P
Title: Applying item response theory modeling for evaluating questionnaire item and scale properties
Type: Book Chapter
Date: 2004
Book Editors: Fayers Peter M, Hays Ron D
Book Title: Assessing quality of life in clinical trials: methods and practice
ISBN: 0198527691External Web Site Policy
Topic(s): Health-related Quality of Life
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Reeve BB, Masse LC
Title: Item response theory modeling for questionnaire evaluation
Type: Book Chapter
Date: 2004
Book Editors: Presser S, Rothgeb JM, Couper MP, Lessler JT, Martin E, Martin J, Singer E
Book Title: Methods for testing and evaluating survey questionnaires
ISBN: 0471458414External Web Site Policy
Topic(s): Health-related Quality of Life
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Arora NK
Title: Interacting with cancer patients: the significance of physicians' communication behavior.
Type: Journal Article
Date: 2003 Sep
Journal: Soc Sci Med 57(5):791-806
Topic(s): Patient-centered Communication
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;   Decision Making;   Humans;   Neoplasms;   Patient Participation;   Physician-Patient Relations;   psychology;   Quality of Life;   Uncertainty
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Authors: Kreps GL, Arora NK, Nelson DE
Title: Consumer/provider communication research: directions for development.
Type: Journal Article
Date: 2003 May
Journal: Patient Educ Couns 50(1):3-4
Topic(s): Patient-centered Communication
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): Patient-centered Care & Communication
Keywords: Communication;   Forecasting;   Humans;   Needs Assessment;   organization & administration;   Patient Selection;   Physician-Patient Relations;   Research;   Research Design;   standards
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Authors: Reeve Bryce B
Title: Item response theory modeling in health outcomes measurement
Type: Journal Article
Date: 2003 Apr
Journal: Expert Review of Pharmacoeconomics and Outcomes Research 3():131-145
Topic(s): Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Clauser SB, Bierman AS
Title: Significance of functional status data for payment and quality.
Type: Journal Article
Date: 2003 Spring
Journal: Health Care Financ Rev 24(3):1-12
Topic(s): Outcomes Research Measures & Methods
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Activities of Daily Living;   Aged;   classification;   Delivery of Health Care, Integrated;   Disability Evaluation;   economics;   Episode of Care;   Female;   Frail Elderly;   Geriatric Assessment;   Health Status Indicators;   Humans;   Male;   Medicare;   methods;   Models, Organizational;   Prospective Payment System;   standards;   Total Quality Management;   United States
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Authors: Perfetto EM, Reeve B, Subedi P, Carlson AM, Stockwell-Morris L
Title: Measuring health status
Type: Book Chapter
Date: 2003
Book Editors: Grauer DW, Lee J, Odom TD, etal
Book Title: Pharmacoeconomics & outcomes
ISBN: 9781880401781External Web Site Policy
Topic(s): Outcomes (All);   Patient-reported Outcomes
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none

Authors: Panter AT, Reeve BB
Title: Assessing tobacco beliefs among youth using item response theory models.
Type: Journal Article
Date: 2002 Nov
Journal: Drug Alcohol Depend 68 Suppl 1():S21-39
Topic(s): Outcomes Research Measures & Methods;   Tobacco
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adolescent;   Adult;   Attitude to Health;   Child;   Culture;   epidemiology;   Female;   Health Behavior;   Humans;   Male;   Models, Statistical;   Questionnaires;   Smoking
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Authors: Lipscomb J, Snyder CF
Title: The Outcomes of Cancer Outcomes Research: focusing on the National Cancer Institute's quality-of-care initiative.
Type: Journal Article
Date: 2002 Jun
Journal: Med Care 40(6 Suppl):III3-10
Topic(s): Outcomes (All)
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: classification;   Clinical Trials as Topic;   Health Maintenance Organizations;   Health Policy;   Humans;   Interinstitutional Relations;   National Institutes of Health (U.S.);   Neoplasms;   Outcome Assessment (Health Care);   Private Sector;   Public Sector;   Research Design;   SEER Program;   United States;   United States Agency for Healthcare Research and Quality
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Authors: Arora NK, Johnson P, Gustafson DH, McTavish F, Hawkins RP, Pingree S
Title: Barriers to information access, perceived health competence, and psychosocial health outcomes: test of a mediation model in a breast cancer sample.
Type: Journal Article
Date: 2002 May
Journal: Patient Educ Couns 47(1):37-46
Topic(s): Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life;   Information Seeking
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Access to Information;   Adaptation, Psychological;   Adult;   Breast Neoplasms;   Female;   Health Services Accessibility;   Humans;   Middle Aged;   Patient Education as Topic;   psychology;   Questionnaires;   Regression Analysis;   Self Efficacy;   Treatment Outcome;   United States
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Authors: Potosky AL, Reeve BB, Clegg LX, Hoffman RM, Stephenson RA, Albertsen PC, Gilliland FD, Stanford JL
Title: Quality of life following localized prostate cancer treated initially with androgen deprivation therapy or no therapy.
Type: Journal Article
Date: 2002 Mar 20
Journal: J Natl Cancer Inst 94(6):430-7
Topic(s): Health-related Quality of Life;   Treatment
Tumor Site(s): Prostate
Data Source/Project/Initiative(s): Prostate Cancer Outcomes Study (PCOS)
Keywords: Adult;   Aged;   Aged, 80 and over;   Androgen Antagonists;   Health Status;   Humans;   Male;   Middle Aged;   Orchiectomy;   Patient Satisfaction;   Prostatic Neoplasms;   psychology;   Quality of Life;   Sexual Behavior;   therapeutic use;   therapy
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Authors: Brown ML, Knopf KB, Marcus S, Lipscomb J
Title: Economic analysis and clinical research
Type: Book Chapter
Date: 2002
Book Editors: Gallin John I
Book Title: Principles and practice of clinical research
ISBN: 0122740653External Web Site Policy
Topic(s): Prevention;   Screening;   Treatment;   Economics of Cancer;   Research Methodology;   Policy
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none
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Authors: Clauser S
Title: The use of performance measurement in evaluating quality in Medicare
Type: Book Chapter
Date: 2002
Book Editors: Preuss Klaus Jurgen, Rabiger Jutta, Sommer Jurg H, Andersen Hanfried H
Book Title: Managed care: Evaluation and Performance - Measurement integrierter Versorgungsmodelle: Stand der Entwicklung in der EU, der Schweiz und den USA
ISBN: 3794520998External Web Site Policy
Topic(s): Quality of Care
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: none

Authors: Arora NK, Gustafson DH, Hawkins RP, McTavish F, Cella DF, Pingree S, Mendenhall JH, Mahvi DM
Title: Impact of surgery and chemotherapy on the quality of life of younger women with breast carcinoma: a prospective study.
Type: Journal Article
Date: 2001 Sep 01
Journal: Cancer 92(5):1288-98
Topic(s): Treatment;   Outcomes (All);   Patient-reported Outcomes;   Health-related Quality of Life
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Adaptation, Psychological;   Adult;   Antineoplastic Agents;   Body Image;   Breast Neoplasms;   drug therapy;   Female;   Humans;   Mastectomy;   Mastectomy, Segmental;   Middle Aged;   Patient Satisfaction;   Prospective Studies;   psychology;   Quality of Life;   surgery;   therapeutic use
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Authors: Donaldson MS
Title: Continuity of care: a reconceptualization.
Type: Journal Article
Date: 2001 Sep
Journal: Med Care Res Rev 58(3):255-90
Topic(s): Health Care Systems
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Continuity of Patient Care;   Health Services Research;   Home Care Agencies;   Humans;   Information Services;   organization & administration;   Retrospective Studies;   United States
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Authors: Brown ML, Lipscomb J, Snyder C
Title: The burden of illness of cancer: economic cost and quality of life.
Type: Journal Article
Date: 2001
Journal: Annu Rev Public Health 22():91-113
Topic(s): Economics of Cancer;   Economics of Cancer - Cost of Illness
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Cost of Illness;   economics;   epidemiology;   Health Care Costs;   Health Planning;   Humans;   Medical Record Linkage;   mortality;   Neoplasms;   Quality of Life;   SEER Program;   statistics & numerical data;   United States
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Authors: Rimer BK, Lipscomb J
Title: Enhancing the use of mammography: effectiveness and cost.
Type: Journal Article
Date: 2000 Sep-Oct
Journal: Eff Clin Pract 3(5):250-5
Topic(s): Preventive & Screening Services
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): none
Keywords: Breast Neoplasms;   Cost-Benefit Analysis;   economics;   Female;   Humans;   Mammography;   Patient Acceptance of Health Care;   Quality-Adjusted Life Years;   radiography;   Randomized Controlled Trials as Topic;   Reminder Systems;   United States;   utilization
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Authors: Shariff-Marco S, Gee GC, Breen N, Willis G, Reeve BB, Grant D, Ponce NA, Krieger N, Landrine H, Williams DR, Alegria M, Mays VM, Johnson TP, Brown ER
Title: A mixed-methods approach to developing a self-reported racial/ethnic discrimination measure for use in multiethnic health surveys.
Type: Journal Article
Date:
Journal: Ethn Dis 19(4):447-53
Topic(s): Cognitive Methods in Survey Research;   Health Disparities;   Research Methodology;   Surveillance
Tumor Site(s): All sites or no specific site
Data Source/Project/Initiative(s): California Health Interview Survey (CHIS) Cancer Control Items
Keywords: Cross-Cultural Comparison;   Data Collection;   Ethnic Groups;   Health Surveys;   Humans;   methods;   Prejudice;   Psychometrics
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Last Modified: 02 Jul 2014