International Consortia & Conferences
Applied Research Program (ARP) staff coordinate and are active in a number of international consortia. Staff also regularly present research findings at international conferences. These activities provide a forum for sharing new knowledge and directly contribute to ARP's mission to understand how and why cancer care and control activities influence patterns of care and trends in cancer incidence, morbidity, mortality and survival.
- The International Cancer Screening Network
- Canadian Cancer Surveillance and Epidemiology Networks
- Canadian Cancer Society Research Institute
- All Ireland-NCI Consortium
- European Organization for Research and Treatment of Cancer
- The International Health Economics Association
- Institute for Clinical Evaluative Sciences
- Ontario Institute for Cancer Research
- Nutritional Surveillance and Epidemiology
- World Conference on Tobacco OR Health
- International Conference on Diet and Activity Methods
- International Society for Behavioral Nutrition and Physical Activity
- Cancer and Primary Care International Research Network
- International Children’s Accelerometer Database
- Measurement of Active and Sedentary Behaviors: Bridging Methodological Approaches in Pan American Research
- World Congress on Developmental Origins of Health and Disease
- International Society for Quality of Life Research
- International Conference on Communication in Healthcare
- Reporting of Studies Conducted Using Routinely collected Data
- European Group for Blood and Marrow Transplantation
- International Conference on Ambulatory Monitoring of Physical Activity and Movement
- International Congress on Physical Activity and Public Health
The International Cancer Screening Network (ICSN), which is administered by ARP, is a voluntary consortium of countries that have active population-based cancer screening programs. The ICSN is dedicated to collaborative research aimed at identifying and fostering efficient and effective approaches to cancer control world-wide through population-based screening efforts.
These networks were created by the Canadian Partnership Against Cancer to renew cancer surveillance practices by increasing the quality and breadth of surveillance products, enhancing analytic capacity, and implementing knowledge translation practices. Dr. Rachel Ballard-Barbash, Associate Director of ARP, serves on the international scientific advisory committee that reviews the networks.
Dr. Rachel Ballard-Barbash serves on the development committee of the Canadian Cancer Society Research Institute (CCSRI), which aims to reduce cancer incidence. The goals of the committee's research program are to build Canadian capacity in gap areas of risk reduction research, facilitate knowledge translation in the research-practice-policy continuum, integrate CCSRI's core research programs and major initiatives with its divisional activities, and establish CCSRI's national leadership in risk reduction and prevention research.
In 1999, Ireland, Northern Ireland, and the US formed the Consortium, whose primary goal is to enhance the infrastructure for cancer research and cancer care across all of Ireland. ARP has provided extensive training to clinicians and scientists from Ireland and Northern Ireland through the Consortium. For example, ARP staff presented on the policy environment for promoting US fruit and vegetable consumption and on research and health surveillance activities at the 2004 Ireland Cancer Consortium on Diet, Physical Activity and Obesity. In 2007, ARP staff presented on health services research across the cancer continuum at a Consortium conference and convened an NCI-All Ireland Workshop on Health Economics and Health Policy Research in the Washington, DC metropolitan area. In 2013, Dr. Robin Yabroff (ARP Health Services and Economics Branch) gave a keynote address on the economic burden of cancer in the US at the Consortium's symposium on the Economics of Cancer Research. Staff in ARP co-lead the US oversight and mentors committee for a health economics fellowship program sponsored by the Consortium.
The European Organization for Research and Treatment of Cancer (EORTC) comprises more than 300 hospitals/cancer centers in more than 30 countries. It develops, conducts, coordinates, and stimulates translational and clinical research in Europe to improve the management of cancer and related problems, by improving survival and quality of life. The goal of the EORTC is to improve the standard of cancer treatment through the testing of more effective therapeutic strategies. The NCI has had a collaborative agreement with the EORTC since the early 1970s. Staff in ARP work closely with EORTC members on issues relating to drug development, clinical trials, pharmacovigilance, data collection, quality assurance, and outcomes research.
The International Health Economics Association (IHEA) is a professional association whose mission is to increase communication among health economists and foster a high standard of debate in the application of economics to health and health care systems. ARP staff regularly present research findings at the biennial IHEA meetings, which are held in locations around the world.
The Institute for Clinical Evaluative Sciences (ICES) helps policymakers, managers, planners, practitioners, and researchers shape the direction of the Ontario health care system by assessing care delivery, patterns of service utilization, health technologies, drug therapies and other treatment modalities. ARP staff advise ICES faculty on health services research, such as anonymous linkage of population-based health information on an individual patient basis.
The Ontario Institute for Cancer Research (OICR) is a translational research organization that focuses on prevention, early detection, diagnosis and treatment. ARP staff serve on the Scientific Advisory Board of the OICR Health Services Research Program.
Nutritional Surveillance and Epidemiology
ARP staff participate in several advisory groups that are involved in nutritional surveillance and epidemiology in Europe and Canada: the Scientific Committee for the Nutrinet-Santé cohort study (France), the International Scientific Advisory Board for the Canadian Partnership for Tomorrow Project, and the Advisory Panel for PANEU-Pilot consortium, which has representation from Bulgaria, Finland, Germany, Greece, Hungary, Poland, and Portugal.
The NCI is a co-sponsor of the World Conference on Tobacco OR Health. This triennial conference is the preeminent international gathering of tobacco researchers and public health practitioners, with more than 5,000 participants from 173 countries attending. The 14th World Conference on Tobacco OR Health, which was held Feb 8 - 12, 2009 in Mumbai, India, in conjunction with International Union Against Cancer's (UICC) World Cancer Congress, highlighted the latest tobacco science research. ARP provided funding and technical expertise for conference planning. The next conference will take place March 20-24, 2012 in Changi, Singapore. Staff in ARP will present on how surveillance research can inform policy, using menthol cigarette smoking as an example.
The International Conference on Dietary Assessment Activity Methods (ICDAM) brings together researchers from around the world to discuss the latest developments in nutritional epidemiology and dietary and physical activity assessment methods. The 2009 conference was held in Washington, DC. The next ICDAM was held in Rome, Italy in May 2012. Staff in ARP served on the planning committee and presented at the conference. The final program is available online. The next conference will be held in September 2015 in Brisbane, Australia. For more information, visit the ICDAM9 Web site.
The International Society for Behavioral Nutrition and Physical Activity (ISBNPA) stimulates, promotes and advocates innovative research and policy in behavioral nutrition and physical activity. ARP staff presentations at the 2011 annual meeting discussed identifying food patterns in the food environment, two tools developed by the National Collaborative on Childhood Obesity Research (NCCOR) (Measures Registry and Catalogue of Surveillance Systems), diet and physical activity analyses of the American Time Use Survey (ATUS), diet and physical activity grants funded under the NIH Genes, Environment and Health Initiative (GEI), and assessment of the food environment in relation to diet and health.
The Cancer and Primary Care International Research Network (Ca-PRI) was established in 2008 as an open, multidisciplinary network for researchers in primary cancer care and related areas. Ca-PRI fosters international collaborative research for insights into the role of primary care across the cancer continuum. ARP staff participate in Ca-PRI and its meetings.
The International Children's Accelerometer Database (ICAD) pools data for more than 25,000 youth ages 3 - 16 years from studies conducted in ten countries. The physical activity data are collected using similar accelerometers and data collection protocols. The database became publicly available in 2012. ARP staff collaborate with the ICAD consortium, which has representation from more than 20 organizations.
Measurement of Active & Sedentary Behaviors: Bridging Methodological Approaches in Pan American Research
The Physical Fitness Research Center of São Caetano do Sul - CELAFISCS and the University of Pelotas partnered with the NCI to host a July 2011 workshop in Guadalajara, Mexico, titled "Measurement of Active and Sedentary Behaviors: Bridging Methodological Approaches in Pan American Research." The workshop examined considerations for assessing physical activity and sedentary behaviors in Latin America and promoted the development of cross-culturally proficient assessment methods. Participants discussed the applicability of knowledge produced in a 2010 workshop on self-report methods for assessing physical activity and sedentary behavior, as well as opportunities for Pan American collaboration to advance active and sedentary behavior research. At the end of the meeting, attendees called for the development of a searchable web-based resource to guide researchers and practitioners in using self-report measures of physical activity and to identify approaches for harmonizing surveillance methods in order to compare population estimates of physical activity internationally.
ARP staff chaired a cancer session at the 7th World Congress on Developmental Origins of Health and Disease in September 2011 in Portland, Oregon. Participants from 47 countries attended. This international meeting discussed the early origins of adult conditions with a wide variety of outcomes, from cognitive function to development of chronic disease. Opening and closing plenary sessions addressed global challenges, showcased templates for successful public health interventions, and considered how science, public health policy, and political sectors can come together to implement change.
The mission of the International Society for Quality of Life Research (ISOQOL) is to advance the scientific study of health-related quality of life and other patient-centered outcomes to identify effective interventions, enhance the quality of health care and promote the health of populations. ARP staff regularly participate in ISOQOL annual meetings. At the October 2012 annual meeting in Budapest, Hungary, ARP staff presented on the Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE). The PRO-CTCAE system provides a Web-based platform to collect patient reports of symptoms they are experiencing while undergoing cancer treatment, for the purpose of enhancing adverse event reporting.
At the October 2013 conference held in Montreal, Canada, ARP staff led a Special Interest Group session titled "Facilitating patient engagement within the context of multiple chronic illnesses: developing a research agenda." The sessions enhance understanding among the attending researchers of health care challenges and communication needs of individuals living with multiple chronic illnesses. The session also focused on identifying indicators of patient engagement within the context of multiple chronic illnesses and developing a research agenda for future communication research needed to facilitate patient engagement.
ARP staff participate in the RECORD working group, an international collaborative initiative whose purpose is to develop reporting guidelines for observational studies using health data routinely collected for non-research purposes. The working group is composed of international experts in the use of observational health claims data.
European Group for Blood and Marrow Transportation
In 2012, a NCI initiative sponsored by the NCI Center for Global Health launched a European Group for Blood and Marrow Transplantation (EBMT)-wide (55 countries) effort focused on advancing education and training in graft versus host disease (GVHD), with a particular emphasis on chronic GVHD (cGVHD), the most prominent late effect in cancer survivors after allogeneic transplant. The ultimate goal is to develop a mechanism that will facilitate the understanding and overcoming of great disparities in post-transplant care and research across Europe as well as advance research in this area by fostering collaborations on both sides of the Atlantic. Post-allogeneic transplant survivorship is an attractive model to study cancer survivorship due to the abundant medical and quality-of-life issues in these patients.
Since the December 2012 project development meeting, in which experts from ARP participated, this NCI-Europe collaborative group has conducted a descriptive study of the uptake and use of recommendations for diagnosis, severity scoring, and management of chronic GVHD.
International Conference on Ambulatory Monitoring of Physical Activity and Movement (ICAMPAM)
ARP staff served on the planning committee, as well as presented a pre-conference workshop, at the 3rd International Conference on Ambulatory Monitoring of Physical Activity and Movement (ICAMPAM), held in Amherst, Massachusetts in June 2013. The title of the workshop was "Moving Towards Development of Shared Database Resources in Ambulatory Monitoring Research." ARP staff also presented on physical activity monitoring in the National Health and Nutrition Examination Survey (NHANES) and on developing information and infrastructure resources for collaboration in ambulatory monitoring research.
ARP staff attended the 4th International Congress on Physical Activity and Public Health (ICPAPH) in Sydney, Australia, in November 2012. ICPAPH is the only international professional congress that focuses solely on research and promotion of physical activity and public health. It has a key focus on population surveillance of physical activity and physical activity assessment. ARP staff also presented a tutorial session on NCI/NIH-supported measures of physical activity, sleep, and body strength in the National Health and Nutrition Examination Survey (NHANES) and moderated a session on global trends in physical activity and participated in a panel discussion, called 2020 Vision, that focused on advances in physical activity assessment.
Last Modified: 04 Dec 2013