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Number of publications: 8

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Authors: Smith AW, Bellizzi KM, Keegan TH, Zebrack B, Chen VW, Neale AV, Hamilton AS, Shnorhavorian M, Lynch CF
Title: Health-related quality of life of adolescent and young adult patients with cancer in the United States: the Adolescent and Young Adult Health Outcomes and Patient Experience study.
Type: Journal Article
Date: 2013 Jun 10
Journal: J Clin Oncol 31(17):2136-45
Topic(s): Health Disparities;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   Female;   Humans;   Male;   Neoplasms;   physiopathology;   psychology;   Quality of Life;   Treatment Outcome;   United States;   Young Adult
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Authors: Kent EE, Smith AW, Keegan TH, Lynch CF, Wu XC, Hamilton AS, Kato I, Schwartz SM, Harlan LC
Title: Talking About Cancer and Meeting Peer Survivors: Social Information Needs of Adolescents and Young Adults Diagnosed with Cancer.
Type: Journal Article
Date: 2013 Jun
Journal: J Adolesc Young Adult Oncol 2(2):44-52
Topic(s): Health Disparities;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Smith AW, Parsons HM, Kent EE, Bellizzi K, Zebrack BJ, Keel G, Lynch CF, Rubenstein MB, Keegan TH, AYA HOPE Study Collaborative Group
Title: Unmet Support Service Needs and Health-Related Quality of Life among Adolescents and Young Adults with Cancer: The AYA HOPE Study.
Type: Journal Article
Date: 2013
Journal: Front Oncol 3():75
Topic(s): Economics of Cancer;   Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Information Seeking;   Outcomes (All);   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: none
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Authors: Bellizzi KM, Smith A, Schmidt S, Keegan TH, Zebrack B, Lynch CF, Deapen D, Shnorhavorian M, Tompkins BJ, Simon M, Adolescent and Young Adult Health Outcomes and Patient Experience (AYA HOPE) Study Collaborative Group
Title: Positive and negative psychosocial impact of being diagnosed with cancer as an adolescent or young adult.
Type: Journal Article
Date: 2012 Oct 15
Journal: Cancer 118(20):5155-62
Topic(s): Economics of Cancer;   Health-related Quality of Life;   Survivorship
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study;   Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;   Adolescent Psychology;   Adult;   Body Image;   economics;   Female;   Goals;   Humans;   Interpersonal Relations;   Male;   Neoplasms;   Population Surveillance;   psychology;   Quality of Life;   Social Support;   Socioeconomic Factors;   Survivors;   Young Adult
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Authors: Keegan TH, Lichtensztajn DY, Kato I, Kent EE, Wu XC, West MM, Hamilton AS, Zebrack B, Bellizzi KM, Smith AW, AYA HOPE Study Collaborative Group
Title: Unmet adolescent and young adult cancer survivors information and service needs: a population-based cancer registry study.
Type: Journal Article
Date: 2012 Sep
Journal: J Cancer Surviv 6(3):239-50
Topic(s): Economics of Cancer;   Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Information Seeking;   Patient-reported Outcomes;   Quality of Care;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   diagnosis;   Female;   Health Care Surveys;   Health Services Accessibility;   Health Services Needs and Demand;   Humans;   Information Services;   Male;   Needs Assessment;   Neoplasms;   psychology;   Quality of Life;   Questionnaires;   Registries;   Survivors;   therapy;   Young Adult
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Authors: Parsons HM, Harlan LC, Lynch CF, Hamilton AS, Wu XC, Kato I, Schwartz SM, Smith AW, Keel G, Keegan TH
Title: Impact of cancer on work and education among adolescent and young adult cancer survivors.
Type: Journal Article
Date: 2012 Jul 01
Journal: J Clin Oncol 30(19):2393-400
Topic(s): Economics of Cancer;   Health-related Quality of Life;   Outcomes (All);   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   Educational Status;   Employment;   Humans;   Multivariate Analysis;   Neoplasms;   psychology;   statistics & numerical data;   Survivors;   therapy;   Young Adult
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Authors: Kent EE, Parry C, Montoya MJ, Sender LS, Morris RA, Anton-Culver H
Title: "You're too young for this": adolescent and young adults' perspectives on cancer survivorship.
Type: Journal Article
Date: 2012 Mar
Journal: J Psychosoc Oncol 30(2):260-79
Topic(s): Health Care Systems;   Health Disparities;   Health-related Quality of Life;   Patient-reported Outcomes;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study
Keywords: Adolescent;   Adult;   Age Factors;   Cost of Illness;   Delayed Diagnosis;   diagnosis;   etiology;   Female;   Focus Groups;   Humans;   Infertility;   Interpersonal Relations;   Interviews as Topic;   Male;   Medication Adherence;   Neoplasms;   psychology;   Psychology;   Survivors;   Young Adult
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Authors: Harlan LC, Lynch CF, Keegan TH, Hamilton AS, Wu XC, Kato I, West MM, Cress RD, Schwartz SM, Smith AW, Deapen D, Stringer SM, Potosky AL, AYA HOPE Study Collaborative Group
Title: Recruitment and follow-up of adolescent and young adult cancer survivors: the AYA HOPE Study.
Type: Journal Article
Date: 2011 Sep
Journal: J Cancer Surviv 5(3):305-14
Topic(s): Economics of Cancer;   Health Care Systems;   Health-related Quality of Life;   Outcomes (All);   Clinical Outcomes;   Patient-reported Outcomes;   Outcomes Research Measures & Methods;   Quality of Care;   Research Methodology;   Survivorship;   Treatment
Tumor Site(s): Leukemia;   Lymphoma;   Ovary;   Testis;   Other
Data Source/Project/Initiative(s): Adolescent & Young Adult Health Outcomes & Patient Experience (AYA HOPE) Study;   Surveillance, Epidemiology, & End Results (SEER) Program
Keywords: Adolescent;   Adult;   Algorithms;   Continuity of Patient Care;   Data Collection;   Female;   Follow-Up Studies;   Humans;   Male;   mortality;   Neoplasms;   Patient Participation;   Patient Selection;   Psychology;   psychology;   Quality of Life;   rehabilitation;   SEER Program;   statistics & numerical data;   Survivors;   Young Adult
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Last Modified: 18 Mar 2014